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Ndife DEBRA
DEBRA ndi bungwe lothandizira kafukufuku wamankhwala ku UK komanso bungwe lothandizira odwala kwa anthu omwe ali ndi vuto losowa kwambiri, lopweteka kwambiri, lotupa pakhungu, epidermolysis bullosa (EB) yomwe imadziwikanso kuti 'butterfly skin'.
Thandizo la EB Community
Mukufuna kujowina gulu?
Tili ndi gulu lodzipereka kuti lithandizire anthu omwe ali ndi EB popereka chidziwitso ndi upangiri kuphatikiza zothandiza, zachuma, komanso chithandizo chamalingaliro. Kukhala membala ndi kwaulere ndipo kumapereka mwayi wolumikizana ndi ena okhala ndi EB.
Zikachitika mwadzidzidzi
Mukufuna chisamaliro chachangu? Mu kuyimba kwadzidzidzi 999.
Kwa osakhala angozi funsani Mtengo wa NHS111 kapena GP wanu.
Kodi muli ndi mafunso osayankhidwa okhudza EB?
Chonde voterani tsopano mafunso 10 apamwamba a EB omwe mukufuna kuyankhidwa kudzera mu kafukufuku wa EB.
Mashopu athu achifundo
Pogula m'masitolo achifundo a DEBRA, mukuthandiza anthu okhala ndi EB, komanso kukhala abwino pa chikwama chanu ndi dziko lathu lapansi.
Zipsera zosawoneka
Thandizo laumoyo wa anthu omwe ali ndi EB silingadikire. Kodi muthandizira kuti palibe amene akukumana ndi zovuta za EB yekha?