Ndife DEBRA
Ndife bungwe lothandizira odwala kwa anthu omwe akukhudzidwa ndi epidermolysis bullosa (EB) - khungu la butterfly. Ndifenso m'modzi mwa omwe amapereka ndalama zambiri pakufufuza zamankhwala ndi machiritso a EB.
Khalani membala
Umembala ndi waulere ndipo ndi wotseguka kwa aliyense amene ali ndi EB kapena kuthandiza wina yemwe ali ndi EB: makolo, osamalira, achibale, akatswiri azachipatala ndi ofufuza. Monga membala, mutha kupeza chithandizo chothandizira, chamalingaliro, komanso chandalama, kuphatikiza mwayi wolumikizana ndi ena mdera la EB.
Mukufuna chisamaliro chachangu?
Mu kuyimba kwadzidzidzi 999. Kwa osakhala angozi funsani Mtengo wa NHS111 kapena GP wanu.
Mashopu athu achifundo
Pogula m'masitolo achifundo a DEBRA, mukuthandiza anthu okhala ndi EB, komanso kukhala abwino pa chikwama chanu ndi dziko lathu lapansi.
Ululu sudikira. Ifenso sitidzatero.
Tithandizeni kukulitsa kusaka kwathu kwamankhwala ndi machiritso a EB. Kuwirikiza kawiri zomwe mwapereka lero kudzera mu Big Give.
Lowani nawo Team EB
Tikufuna INU kuti mulowe nawo nyenyezi ngati Scott Brown ndi Emma Dodds. Sankhani vuto lanu, lembani, lembani omwe akukuthandizani, ndipo KHALANI kusiyana kwa EB.
