Pitani ku nkhani
Isla, yemwe amakhala ndi recessive dystrophic epidermolysis bullosa (RDEB), akusewera ndi galu wake. Isla, yemwe amakhala ndi recessive dystrophic epidermolysis bullosa (RDEB), akusewera ndi galu wake.

Ndife DEBRA

DEBRA ndi bungwe lothandizira kafukufuku wamankhwala ku UK komanso bungwe lothandizira odwala kwa anthu omwe ali ndi vuto losowa kwambiri, lopweteka kwambiri, lotupa pakhungu, epidermolysis bullosa (EB) yomwe imadziwikanso kuti 'butterfly skin'.

DZIWANI ZAMBIRI

Thandizo la EB Community

Mukufuna kujowina gulu?

Tili ndi gulu lodzipereka kuti lithandizire anthu omwe ali ndi EB popereka chidziwitso ndi upangiri kuphatikiza zothandiza, zachuma, komanso chithandizo chamalingaliro. Kukhala membala ndi kwaulere ndipo kumapereka mwayi wolumikizana ndi ena okhala ndi EB.

khalani membala

Zikachitika mwadzidzidzi

Mukufuna chisamaliro chachangu? Mu kuyimba kwadzidzidzi 999.

Kwa osakhala angozi funsani Mtengo wa NHS111 kapena GP wanu.

Zambiri zadzidzidzi
 

Kodi muli ndi mafunso osayankhidwa okhudza EB?
Chonde voterani tsopano mafunso 10 apamwamba a EB omwe mukufuna kuyankhidwa kudzera mu kafukufuku wa EB.
FUFUZANI TSOPANO
Mkati mwa shopu yachifundo ya DEBRA yopereka zovala ndi zinthu zina.

Mashopu athu achifundo

Pogula m'masitolo achifundo a DEBRA, mukuthandiza anthu okhala ndi EB, komanso kukhala abwino pa chikwama chanu ndi dziko lathu lapansi.

Pezani shopu ya DEBRA
Sarah, yemwe amakhala ndi EB, ali ndi tsitsi lalitali ndipo wavala juzi la buluu wowala.
Pempho laposachedwa

Zipsera zosawoneka

Thandizo laumoyo wa anthu omwe ali ndi EB silingadikire. Kodi muthandizira kuti palibe amene akukumana ndi zovuta za EB yekha?

PEREKA LERO

Zochitika za DEBRA

Pezani zochitika zonse za DEBRA
Khamu lalikulu la anthu ovala zovala za Santa Claus likusonkhana panja.

Santa mu mzinda 2024

  Santa mu City ndiye njira yabwino yopezera inu, anzanu, ndi banja lanu ku London ...
Dziwani zambiri
Wosewera mpira wa rugby yemwe ali ndi jersey yoyera yoyimira chochitika cha "Chakudya cha Masana ndi Mike Tindall MBE" akuthamanga atagwira mpira wa rugby pamasewera.

Chakudya chamasana ndi Mike Tindall MBE 2025

Pamene dziko likusangalala ndi Six Nations Championship, bwerani nafe chakudya chamasana chodabwitsa Lachinayi 27 ...
Dziwani zambiri
David Williams wochokera ku DEBRA EB Community Support Team, akuchititsa msonkhano wamagulu aamuna pa Members 'Weekend 2024.

Gulu la Amuna la DEBRA - Disembala 10

Timadziwa polankhula ndi mamembala athu kuti abambo nthawi zina amavutika kufotokoza zakukhosi kwawo ndikupeza mwayi ...
Dziwani zambiri

Nkhani zaposachedwa & mabulogu ochokera ku DEBRA

Onani nkhani zonse
Akazembe a DEBRA amatenga nthawi yosangalatsa pamene banjali likukhala pamodzi, mwana ali kumanzere. Pakalipano, mkazi wovala chovala cha pinki akuwala ndi chisangalalo kumanja.

DEBRA imasankha mamembala awiri atsopano ngati akazembe

Dziwani zambiri
Munthawi ya DEBRA Fight Night 2024, osewera awiri ankhonya akumana mu mphete, atazunguliridwa ndi owonera mwachidwi. Woyimbira amayima chilili pafupi, kuwonetsetsa kuti masewerawa amasewera mwachilungamo pomwe sikirini yakumbuyo ikuwonetsa nthawi iliyonse yosangalatsa yamasewera.

DEBRA UK Fight Night 2024, motsogozedwa ndi Frank Warren, ikweza ndalama zokwana £200,000!

Dziwani zambiri
Anthu atatu aimirira pamodzi m’chipinda chowala kwambiri, ndipo mkazi mmodzi ali pakati ali ndi amuna awiri ovala masuti.

DEBRA UK chakudya chamasana ku The Beaumont hotelo ndi HRH Duchess wa Edinburgh GCVO

Dziwani zambiri