Pitani ku nkhani
Matilda Mitchell-Quinn, yemwe amakhala ndi EB, ku DEBRA Members Weekend 2025.

Ndife DEBRA

Ndife bungwe lothandizira odwala kwa anthu omwe akukhudzidwa ndi epidermolysis bullosa (EB) - khungu la butterfly. Ndifenso m'modzi mwa omwe amapereka ndalama zambiri pakufufuza zamankhwala ndi machiritso a EB.

DZIWANI ZAMBIRI

 

EB Nambala yothandizira

Ngati mukukhala ndi EB, chonde tiimbireni pa 01344 577 689. Tsegulani Lolemba mpaka Lachisanu kuyambira 8am mpaka 5:30pm.

Kapena pezani mayankho a mafunso anu ambiri maola 24 patsiku, masiku 7 pa sabata pogwiritsa ntchito chatbot yathu . Ingodinani chizindikiro chomwe chili pakona yakumanja pansi pa sikirini.

Werengani zambiri zathu zadzidzidzi

Mkati mwa shopu yachifundo ya DEBRA yopereka zovala ndi zinthu zina.

Mashopu athu achifundo

Pogula m'masitolo achifundo a DEBRA, mukuthandiza anthu okhala ndi EB, komanso kukhala abwino pa chikwama chanu ndi dziko lathu lapansi.

Pezani shopu ya DEBRA
Azimayi awiri anayimirira ndikuyankhula pamwambo. Mmodzi, woimira ntchito za mamembala a DEBRA UK, ali ndi mapepala, pamene wina amavala malaya abuluu okhala ndi dzina. Opezekapo amasanganikirana kumbuyo. Azimayi awiri anayimirira ndikuyankhula pamwambo. Mmodzi, woimira ntchito za mamembala a DEBRA UK, ali ndi mapepala, pamene wina amavala malaya abuluu okhala ndi dzina. Opezekapo amasanganikirana kumbuyo.

Khalani membala wa DEBRA

Ndi yaulere, yosavuta, ndipo imakupatsani mwayi wopeza chithandizo chathu chosiyanasiyana komanso maubwino athu. Zimangotenga masekondi ochepa kuti mulowe nawo mdera lathu.

Lowani lero kwaulere

Zochitika za DEBRA

Pezani zochitika zonse za DEBRA

DEBRA Fight Night 2026

Tigwirizaneni nafe pa DEBRA's Fight Night pa 27 Novembala 2026, yomwe ikukonzedwa ndi Frank Warren , manejala wodziwika bwino wa nkhonya . Chaka chino, tikusangalala kulandira alendo ku Royal Lancaster London . Madzulo osangalatsa awa ndi abwino kwambiri posangalatsa makasitomala, antchito, abwenzi ndi abale.

Dziwani zambiri

DEBRA Firewalk

Lowani nawo #TeamDEBRA pa mpikisano wathu wosaiwalika wa Firewalk Challenge ndikusonkhanitsa ndalama zofunika zothandizira anthu omwe ali ndi EB. Kutenga nawo gawo mu...
Dziwani zambiri

Mpikisano wa Great Wall of China 2027

Mukufuna mpikisano woti musankhe mu 2027? Mpikisano wa Great Wall of China ukhoza kukhala wanu!...
Dziwani zambiri

Nkhani zaposachedwa & mabulogu ochokera ku DEBRA

Onani nkhani zonse
Anthu asanu ayimirira mozungulira ndi manja awo pakati, aliyense atavala tattoo ya Inside Out temporary.
17th October 2026

Valani mkati mwa Okutobala uno ndipo muyime pafupi ndi anthu okhala ndi khungu la gulugufe

Dziwani zambiri
Chithunzi cha Emma ndi Colin akulankhulana.
16th October 2026

Colin Farrell adzawonetsa nkhani yokhudza filimu ya EB yotchedwa The Slightest Touch on The Graham Norton Show

Dziwani zambiri
Mamembala a DEBRA ndi ana awo atakhala pansi ndikulankhula pamwambo wa membala.
11th October 2026 ndi Sophie Jones, Mtsogoleri wa Umembala ndi Chiyanjano

"Tinamva Kuti Taona": Momwe Mgwirizano Wapadziko Lonse Wokhazikitsa Zofunika Kwambiri Ukusintha Kafukufuku wa EB - ndi Anthu Omwe Amaupanga

Dziwani zambiri
Chizindikiro cha DEBRA UK. Chizindikirocho chimakhala ndi zithunzi za gulugufe wabuluu komanso dzina la bungwe. Pansi pake, mawu akuti "The Butterfly Skin Charity.
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