Juni watha, nthano ya mpira komanso Wachiwiri kwa Purezidenti waku UK a Graeme Souness CBE, limodzi ndi gulu losambira, adatenga nawo gawo pamasewera. DEBRA UK kusambira zovuta ndi kusambira mtunda wa makilomita 30 umene uli pakati pa Dover ndi Calais. Chilimbikitso chawo chinali Isla Grist, 16, yemwe amakhala ndi recessive dystrophic epidermolysis bullosa. Graeme ndi gulu losambira adafika m'mphepete mwa France ndikumaliza kusambira English Channel mwachangu maola 12 mphindi 17! Izi sizinali zokwanira kwa Graeme, ndipo m'mawu ake, "tiyenera kuchita zambiri”. Chifukwa chake, Seputembala uno, Team DEBRA ikuchita zovuta kwambiri kuti 'KUKHALA kusiyana kwa EB.'
Graeme akufotokoza zambiri:
"Pali zambiri zomwe tiyenera kuchitira anthu omwe ali ndi ululu woopsa wa EB, chifukwa chake tikubwezeretsanso gululi.
Monga timu, tidzakankhira tokha mopitirira nthawi ino ndikusambira kawiri mpaka, kusambira English Channel kumeneko ndi kubwerera, ndiyeno kukwera njinga makilomita 85 kuchokera ku Dover kupita ku London!
Chaka chatha chinali chovuta, chaka chino chikhala cholimba kwambiri.
Ndikhala ndikuchita zovuta zopalasa njinga, ndipo ndikunyoza kupalasa njinga! Sindinamangidwe chifukwa cha izo, koma ndakhala ndikugwira ntchito molimbika. Nthawi iliyonse ndikakwera njinga imeneyo, ndimakhala ndi Isla m'maganizo mwanga. Ndakhala naye nthawi yambiri posachedwapa ndipo nthawi iliyonse ndikamuwona ndimakumbutsidwa chifukwa chake ndikuchita zovuta zina. Isla amakhala ndi ululu wowawa komanso kuyabwa kuchokera ku EB tsiku lililonse.
Vutoli ndikuthandizira DEBRA UK's 2024 'BE kusiyana kwa EB' pempho. Ndi thandizo lanu, DEBRA UK ikhoza kupitiliza kuyikapo ndalama kukonzanso mankhwala mayesero azachipatala. Mayesero azachipatala ndi ofunikira kwambiri kuti atsimikizire kuti mtsogolomu pali chithandizo chamankhwala chothandiza pamtundu uliwonse wa EB. Thandizo lanu lidzathandizanso DEBRA UK kupereka pulogalamu yowonjezera ya EB chithandizo chamagulu. Izi ndizofunikira kuti moyo ukhale wabwino kwa anthu ngati Isla, omwe akukhala ndi EB lero.
Chifukwa chake, chonde lowani nafe, chonde ndithandizireni ine ndi gulu, kapena khazikitsani fundraiser yanu, mungathe kuchita kusambira kwanu komwe kumathandizira ndi kutalika kwa dziwe kwa kilomita iliyonse yomwe gulu lidzakhala likuchita mu English Channel, kapena pali china chirichonse chomwe chiri chosiyana pang'ono kapena 'kunja uko' kuthandiza anthu okhala ndi EB?
Tiyenera aliyense kuchita gawo lake kukhala kusiyana kwa EB; iyi sinkhondo yomwe tingapambane tokha.
Zikomo."
ONANI TSOPANO