Events

Kuti mudziwe zambiri, kusungitsa, kapena kukambirana zakuthandizira zochitika, chonde lemberani athu Gulu Lopeza Ndalama.

Kuthamanga & Zovuta

Ndalama zonse zomwe mumapeza zikuthandizani #FightEB pomwe mukulimbana ndi vuto lanu, mwina vuto la moyo wanu wonse! Werengani zambiri

Zochitika Zazikulu, Chakudya Chamadzulo & Chakudya Chamadzulo

Mu 2024 tikukonzekera nkhomaliro ndi chakudya chamadzulo ndi anthu otchuka pamasewera, zovuta za vinyo, chakudya chamadzulo chokoma ndi ophika odziwika bwino komanso Fight Night yathu yapachaka, pakati pa ena. Werengani zambiri

DEBRA Golf Society

Kaya mukufuna kutenga nawo mbali ndi gulu, nokha kapena kusangalatsa makasitomala, DEBRA yachifundo gofu imapereka tsiku laubwenzi pazochita zonse. Lowani kwaulere lero Werengani zambiri

Gulu Lowombera

Timakhala ndi zochitika zowombera njiwa zachifundo m'malo osiyanasiyana otchuka kumwera kwa England. Werengani zambiri

Kalendala Yopezera Ndalama Zazochitika

Lowani nawo zina mwazochitika zathu za DEBRA. Tsitsani kalendala yathu ya zochitika zopezera ndalama kapena funsani Gulu Lathu Lopanga Ndalama kuti musungitse, kukambirana zakuthandizira zochitika kapena kuti mudziwe zambiri. Werengani zambiri

Perekani zinthu zogulitsira

DEBRA imakhala ndi zochitika zanthawi zonse kuphatikiza masiku a gofu, chakudya chamadzulo komanso Nkhondo Yapachaka ya Fight Night. Nthawi zonse timakhala tikuyang'ana mphotho zomwe zingaphatikizepo m'malo ogulitsa zochitika; Izi ndi njira zabwino zopangira ndalama zofunikira zothandizira omwe akukhala ndi EB. Werengani zambiri

Latest

Lembetsani ku maimelo a umembala wa DEBRA

Lowani kuti mulandire zosintha kuchokera ku DEBRA za umembala wanu.
Othandizira a DEBRA UK, Paul Glover ndi Martyn Rowley, akweza £ 115,000 kwa mabanja omwe akukhala ndi EB

Lachiwiri pa Seputembara 3, othandizira odzipereka a DEBRA UK Paul Glover ndi Martyn Rowley adalandiridwa ku ofesi yayikulu ya DEBRA UK kukondwerera kupambana kwawo kwakukulu kokweza £115,000 mu 2024 kuthandiza omwe akukhala ndi EB.
DEBRA UK Challenge 2024

Seputembala uno, chonde thandizirani Graeme Souness pazovuta zake za 'BE the difference for EB'.
Graeme Souness CBE ndi Isla Grist akumana ndi banja la Barnaby Webber pa BBC Breakfast

Pa 21 Ogasiti 2024, Wachiwiri kwa Purezidenti wa DEBRA Graeme Souness CBE ndi Isla Grist, omwe amakhala ndi recessive dystrophic EB (RDEB), adawonekeranso pa BBC Breakfast.

Ambiri amawerenga

Pezani malo ogulitsa

Pezani sitolo yanu yapafupi ya DEBRA ndikuthandizira kulimbana ndi EB. Masitolo athu amagulitsa zovala zotsika mtengo komanso zapamwamba zomwe timakonda kale, mipando, zinthu zamagetsi, mabuku, zida zakunyumba ndi zina zambiri.
Kusonkhanitsa mipando

Perekani mipando yanu yosafunikira, zinthu zapanyumba ndi zamagetsi pogwiritsa ntchito ntchito yathu yaulere yotolera mipando. Pokhala ndi njira zotetezera, kupereka zinthu zanu sikungakhale kosavuta.
Zinthu zomwe sitigulitsa

Dziwani kuti ndi miyezo yaumoyo ndi chitetezo ndi zilembo zomwe tikufuna komanso zomwe sitingathe kugulitsa.
EB ndi chiyani?

Epidermolysis bullosa (EB) ndi matenda opweteka omwe amatuluka pakhungu popanda mankhwala. Dziwani za mitundu yosiyanasiyana ya EB, zomwe zimayambitsa, zizindikiro ndi mankhwala.
Graeme Souness akusambira English Channel kuti akweze £1.1m kuti athetse ululu wa EB

Graeme Souness, wosewera mpira wakale wapadziko lonse lapansi, manejala, komanso pundit, akusambira English Channel mwezi uno kuti akweze ndalama zokwana £1.1m kuti aletse kuwawa kwa epidermolysis bullosa (EB).
Lumikizanani nafe
Perekani zinthu

Perekani zinthu zanu zomwe munazikonda kale, kuphatikiza zovala, mipando ndi zida zapanyumba kuti zisatayidwe komanso kutithandiza kupeza ndalama zofunika kudzera m'masitolo athu. Dziwani zambiri za momwe mungaperekere zinthu lero.
Tizigwira nafe

DEBRA ikhoza kupitiriza ntchito yake yofunika ndi chithandizo ndi chilimbikitso cha anthu ammudzi komanso ndi khama la antchito ake ndi odzipereka.
Khalani membala

Ngati inu kapena wachibale mukukhala ndi EB, ndinu wosamalira kapena wina amene amagwira ntchito ndi anthu omwe akhudzidwa ndi EB, ndiye kuti mutha kukhala membala wa DEBRA. Dziwani momwe mungachitire.
Nkhani ya Isla

Ndife banja labwinobwino. Ana athu, Isla ndi Emily, amapita kusukulu, amakhala ndi anzawo ndipo amakonda kusewera pa trampoline. Koma m'modzi mwa ana anu akakhala ndi EB, muyenera kutanthauziranso bwino.

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