Mgwirizano wamakampani

Mgwirizano wamakampani umagwira ntchito yofunika kwambiri paulendo wopita #StopThePain of EB. Kugwirizana kwamakampani ndi DEBRA kumatha kukhala kwanzeru komanso kosintha kwa kampani yanu ndi DEBRA, kulimbikitsa antchito anu ndikuthandizira kampani yanu kukwaniritsa zolinga zanu za ESG.

Pamodzi tikhoza kupanga bwino lero kwa anthu omwe ali ndi EB ndikupereka chiyembekezo cha tsogolo lopanda ululu.

Cholinga chathu cha 2024 ndikuchita apilo kwezani £5m kuti mupereke chisamaliro chokhazikika cha EB ndi chithandizo lerondipo mankhwala othandiza amitundu yonse ya EB mawa. Ndi ndalama izi tikukonzekera:

- kupereka upangiri wa akatswiri azamisala ndi zothandizira ku gulu la EB.

- kupereka ndalama zambiri zothandizira ku gulu la EB kuphatikiza ndalama zogulira zinthu zapadera kuti muchepetse zizindikiro za EB, ndi zopereka ndi/kapena kusaina ku chithandizo chandalama chomwe chilipo kuwonetsetsa kuti membala aliyense atha kupezeka pamisonkhano yawo yofunika yachipatala ya EB.

- kupereka mwayi wapadziko lonse ku gulu lothandizira la DEBRA UK kuphatikiza pulogalamu ya zochitika zachigawo za EB Connect.

- pitirizani kutero kufulumizitsa pulogalamu yathu yokonzanso mankhwala pamene tikufuna kupeza chithandizo chamankhwala chamtundu uliwonse wa EB.

 

"Choyipa kwambiri pa EB ndi ululu. Ululuwu ndi wodabwitsa, ndi ululu wa tsiku ndi tsiku umene sutha. Ndiye pali kuyabwa. Masiku ena kulibe kuyabwa ndipo nthawi zina ndimakhala ndi masiku omwe sindingathe kusiya kuyabwa. Kuphulika kwa khungu langa, kuphatikizika kwa zala zanga, ndi kuchepa kwa minofu yanga yapakhungu kumangowonjezereka pamene ndikukula zomwe zidzapangitsa moyo kukhala wovuta kwambiri kwa ine Ichi ndi chifukwa chake ndikufuna chithandizo chamankhwala chogwira mtima ndipo potsirizira pake mankhwala a EB. "

Fazeel Irfan, wazaka 17
Amakhala ndi recessive dystrophic epidermolysis bullosa (RDEB)

 

Kampani yanu ikhoza KUKHALA kusiyana kwa EB mu 2024

Kupereka kwamakampani makamaka kumapangitsa kusiyana kowonekera, kowoneka bwino popereka ndalama zofunikira kumadera anayi omwe ali ofunikira kwa anthu okhala ndi EB.

Research

Kuchita upainiya kuti tipeze mankhwala othandiza, kuphatikizapo kukonzanso mankhwala, ndipo pamapeto pake kuchiritsa kwa EB.

Gulu Lothandizira Anthu

Chisamaliro ndi chithandizo chopititsa patsogolo moyo wa anthu ndi mabanja omwe ali ndi EB.

Zothandiza

Kupyolera mu mwayi wa mamembala ku nyumba zatchuthi za DEBRA zothandizidwa kwambiri ku UK.

Chisamaliro chamoyo

DEBRA imapereka ndalama pa mgwirizano wa EB ndi NHS.

 

Bwanji tsopano?

Tikukhala m'nthawi yazatsopano zasayansi ndi zamankhwala, zomwe zapanga mwayi weniweni wopita patsogolo mu kafukufuku wa EB pazamankhwala am'tsogolo, koma chithandizochi chikufunika tsopano; odwala omwe ali ndi EB sangathe kudikira, amafunikira kuwongolera bwino kwa zizindikiro, moyo wabwino, komanso chiyembekezo chenicheni chakuti machiritso apezeka posachedwa. Ndi chithandizo chanu titha kufulumizitsa mayendedwe ndi kukula kwa kafukufuku wathu wamankhwala ndipo palimodzi titha kukwaniritsa ulendo wofuna komanso wofunikirawu wosintha miyoyo ndikuthetsa kuvutika.

Tony Byrne, CEO DEBRA UK

Mukufuna kupanga mgwirizano wamakampani limodzi?

Chonde funsani Ann lero kapena download our brochure for more information.

  

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