Dziperekeni kwa ife

Odzipereka athu ndi odabwitsa ndipo amapanga kusiyana kwa anthu okhala nawo Epidermolysis Bullosa (EB) tsiku lililonse.

Kaya muli ndi luso linalake kapena mukufuna kuphunzira china chatsopano; ngakhale mupereka nthawi yayitali kapena yaying'ono, pali gawo lanu mu shopu yapafupi. Mipata yathu yambiri yodzipereka komanso njira yosinthika imatanthawuza kuti mumasankha momwe mungaperekere nthawi yanu komanso komwe mungapereke.

Pamodzi ndi antchito ndi makasitomala, odzipereka amasintha miyoyo. Tsegulani zomwe mungathe ndipo zitha kusinthanso zanu.

Odzipereka ndi gawo lofunika kwambiri la sitolo yanga. Odzipereka anga onse ndi odabwitsa ndipo tingakonde zambiri kulowa nawo gulu lathu losangalala. Timalandila aliyense kaya ndi maora angapo pa sabata kapena masiku angapo omwe tingawagwirire.

Woyang'anira Malo a DEBRA

Kudzipereka pakugulitsa

Khalani odzipereka m'malo ogulitsa athu - pezani zambiri zothandiza, phunzirani maluso atsopano, sinthani moyo wanu, dziwani dera lanu ndikuthandizira kuthana ndi EB. Werengani zambiri

Odzipereka popereka ndalama

Kaya ndikudzipereka pazochitika zathu zambiri zopezera ndalama, kuthandiza ndi gulu lathu la gofu kapena kutithandiza ku ofesi, nthawi yanu ikhoza kupanga kusiyana kwakukulu m'magulu athu opeza ndalama. Werengani zambiri

Online Shop Volunteer

Tikuyang'ana anthu odzipereka odzipereka kuti alowe nawo gulu lathu lomwe likukula pamalonda a e-commerce ndikuthandizira mndandanda wa zopereka zomwe zikugulitsidwa pa intaneti. Werengani zambiri

Odzipereka mu ofesi

Tikuyang'ana anthu omwe ali ndi chidwi komanso abwino kuti athandizire ogwira ntchito athu ndi ntchito zosiyanasiyana zoyang'anira mkati mwa gulu lathu lochokera ku likulu lathu. Werengani zambiri

Dziperekeni ngati wothandizira kunyumba patchuthi

Thandizani DEBRA kupereka tchuthi chosaiwalika komanso kupumula kofunikira kwa anthu okhala ndi EB ndi mabanja awo/ DEBRA ili ndi nyumba zingapo zatchuthi zomwe mamembala atha kulemba ganyu pamtengo wotsika. Werengani zambiri

Dziperekeni ngati gawo la Mphotho yanu ya DofE

DEBRA ndi Wothandizira Ntchito Yovomerezeka pagawo lodzipereka la Mphotho ya Duke of Edinburgh. Werengani zambiri

Mapindu odzipereka

Kudzipereka kungakuthandizeni kukhala ndi moyo wabwino, kukuthandizani kukumana ndi anthu amdera lanu, kukulitsa luso lanu ndikukulitsa mwayi wopeza ntchito. Dziwani zambiri za maubwino odzipereka a DEBRA. Werengani zambiri

Kumanani ndi anthu odzipereka

Kumanani ndi ena mwa odzipereka athu ndipo dziwani chifukwa chake adayamba kudzipereka, zomwe amasangalala nazo komanso momwe zawathandizira kukhala ndi moyo wabwino. Werengani zambiri

Latest

Lembetsani ku maimelo a umembala wa DEBRA

Lowani kuti mulandire zosintha kuchokera ku DEBRA za umembala wanu.
Othandizira a DEBRA UK, Paul Glover ndi Martyn Rowley, akweza £ 115,000 kwa mabanja omwe akukhala ndi EB

Lachiwiri pa Seputembara 3, othandizira odzipereka a DEBRA UK Paul Glover ndi Martyn Rowley adalandiridwa ku ofesi yayikulu ya DEBRA UK kukondwerera kupambana kwawo kwakukulu kokweza £115,000 mu 2024 kuthandiza omwe akukhala ndi EB.
DEBRA UK Challenge 2024

Seputembala uno, chonde thandizirani Graeme Souness pazovuta zake za 'BE the difference for EB'.
Graeme Souness CBE ndi Isla Grist akumana ndi banja la Barnaby Webber pa BBC Breakfast

Pa 21 Ogasiti 2024, Wachiwiri kwa Purezidenti wa DEBRA Graeme Souness CBE ndi Isla Grist, omwe amakhala ndi recessive dystrophic EB (RDEB), adawonekeranso pa BBC Breakfast.

Ambiri amawerenga

Pezani malo ogulitsa

Pezani sitolo yanu yapafupi ya DEBRA ndikuthandizira kulimbana ndi EB. Masitolo athu amagulitsa zovala zotsika mtengo komanso zapamwamba zomwe timakonda kale, mipando, zinthu zamagetsi, mabuku, zida zakunyumba ndi zina zambiri.
Kusonkhanitsa mipando

Perekani mipando yanu yosafunikira, zinthu zapanyumba ndi zamagetsi pogwiritsa ntchito ntchito yathu yaulere yotolera mipando. Pokhala ndi njira zotetezera, kupereka zinthu zanu sikungakhale kosavuta.
Zinthu zomwe sitigulitsa

Dziwani kuti ndi miyezo yaumoyo ndi chitetezo ndi zilembo zomwe tikufuna komanso zomwe sitingathe kugulitsa.
EB ndi chiyani?

Epidermolysis bullosa (EB) ndi matenda opweteka omwe amatuluka pakhungu popanda mankhwala. Dziwani za mitundu yosiyanasiyana ya EB, zomwe zimayambitsa, zizindikiro ndi mankhwala.
Graeme Souness akusambira English Channel kuti akweze £1.1m kuti athetse ululu wa EB

Graeme Souness, wosewera mpira wakale wapadziko lonse lapansi, manejala, komanso pundit, akusambira English Channel mwezi uno kuti akweze ndalama zokwana £1.1m kuti aletse kuwawa kwa epidermolysis bullosa (EB).
Lumikizanani nafe
Perekani zinthu

Perekani zinthu zanu zomwe munazikonda kale, kuphatikiza zovala, mipando ndi zida zapanyumba kuti zisatayidwe komanso kutithandiza kupeza ndalama zofunika kudzera m'masitolo athu. Dziwani zambiri za momwe mungaperekere zinthu lero.
Tizigwira nafe

DEBRA ikhoza kupitiriza ntchito yake yofunika ndi chithandizo ndi chilimbikitso cha anthu ammudzi komanso ndi khama la antchito ake ndi odzipereka.
Khalani membala

Ngati inu kapena wachibale mukukhala ndi EB, ndinu wosamalira kapena wina amene amagwira ntchito ndi anthu omwe akhudzidwa ndi EB, ndiye kuti mutha kukhala membala wa DEBRA. Dziwani momwe mungachitire.
Nkhani ya Isla

Ndife banja labwinobwino. Ana athu, Isla ndi Emily, amapita kusukulu, amakhala ndi anzawo ndipo amakonda kusewera pa trampoline. Koma m'modzi mwa ana anu akakhala ndi EB, muyenera kutanthauziranso bwino.

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