Panopa palibe mankhwala a EB, koma ku DEBRA UK tikuyesetsa kusintha izi. Chithandizo chapangidwa kuti chithandizire kuchepetsa ndikuwongolera zizindikiro monga kupweteka ndi kuyabwa kuti moyo ukhale wabwino. Kusamalira moyenera chithandizo chamankhwala kumathandiza kupewa kuwonongeka kwina kwa khungu ndipo kungachepetse chiopsezo chotenga zovuta zina. Timagwiranso ntchito ndi gulu la EB komanso magulu apadera azachipatala kuwonetsetsa kuti anthu omwe ali ndi EB amalandira chisamaliro chabwino kwambiri.
Kugwira ntchito mogwirizana ndi a NHS kuti apereke chithandizo chaumoyo cha EB kwa anthu omwe ali ndi EB. Ma EB Center of Excellence ali ndi magulu osiyanasiyana omwe amapereka chithandizo chamankhwala cha akatswiri a EB. Werengani zambiri
Kwa anthu ambiri omwe ali ndi EB, chisamaliro cha bala ndi gawo lalikulu la moyo watsiku ndi tsiku. Ngakhale chisamaliro chimasiyana pakati pa anthu ndi mtundu wa EB pali malangizo ena omwe angathandize kuchepetsa matuza ndi kuchepetsa ululu. Dziwani zambiri za chisamaliro cha khungu ndi chilonda cha EB. Werengani zambiri
Ziwiri mwazodziwika bwino komanso zovuta kuthana nazo zomwe zimakhudzana ndi zowawa zapakhungu, epidermolysis bullosa (EB) ndi ululu ndi kuyabwa. Werengani zambiri
Pakalipano palibe upangiri wapadera kwa odwala EB chifukwa EB imakhudza aliyense mosiyana. Ngati mukukumana ndi chithandizo chilichonse chaumoyo muyenera kutchula kuti muli ndi EB pamodzi ndi momwe zimakukhudzirani, kotero kuti amapereka chithandizo chabwino kwambiri. Werengani zambiri
Mafunso omwe amafunsidwa pafupipafupi za anti-inflammatory drug apremilast. Werengani zambiri
Mafunso omwe amafunsidwa pafupipafupi okhudza gel osakaniza a Filsuvez® pochiza EB. Werengani zambiri
Maphikidwe okoma ochokera kwa akatswiri athu azakudya a EB, okhala ndi zosakaniza zathanzi kuti apereke ma calorie ambiri, mapuloteni ambiri, zakudya zokhala ndi michere yambiri, ma puddings kapena zokhwasula-khwasula. Werengani zambiri