Kafukufuku wa EB

DEBRA UK ndiye wopereka ndalama zambiri ku UK Epidermolysis Bullosa (EB) kafukufuku. Tayika ndalama zoposa £22m ndipo takhala ndi udindo, kudzera mukupereka ndalama zofufuza ndikugwira ntchito padziko lonse lapansi, kuti tikhazikitse zambiri zomwe zikudziwika za EB.

Tili ndi masomphenya a dziko limene palibe amene amadwala matenda opweteka a khungu Epidermolysis Bullosa (EB). Njira yathu yofufuzira imayang'ana zomwe zili zofunika kwa anthu omwe ali ndi EB. Cholinga chathu ndikupeza mankhwala ochepetsa mphamvu ya tsiku ndi tsiku ya EB, komanso machiritso othetsa EB. Tipereka ndalama zasayansi zapamwamba kwambiri padziko lonse lapansi zomwe zitha kuperekera odwala a EB.

Pamodzi tikulimbana ndi EB, pamodzi tidzagonjetsa EB.

Ntchito zathu zofufuza

Phunzirani zambiri za kafukufuku wa EB ndi mapulojekiti apano omwe tikupereka ndalama. Werengani zambiri

Njira yathu yofufuzira

Cholinga chathu ndikupeza ndikupereka ndalama zothandizira kuchepetsa kukhudzidwa kwa tsiku ndi tsiku kwa EB ndi machiritso othetsa EB. Werengani zambiri

Zotsatira za kafukufuku wathu

Takhala ndi udindo, kudzera mukupereka ndalama pa kafukufuku wosintha moyo, pakukhazikitsa zambiri zomwe zimadziwika tsopano za EB. Werengani zambiri

Funsani ndalama zofufuzira

DEBRA UK imapereka mwayi wopeza ndalama zofufuzira zasayansi kapena zamankhwala pagawo lililonse logwirizana ndi zizindikiro zambiri za EB. Werengani zambiri

Momwe timaperekera ndalama zofufuzira

Momwe DEBRA UK imasankhira mapulojekiti ofufuza a EB kuti apeze ndalama. Werengani zambiri

Gulu la Alangizi a Zopereka Zasayansi

Gulu lathu la akatswiri limapereka ndemanga ndi malingaliro okhudza ntchito zofufuza zomwe timapereka. Werengani zambiri

Kuchita nawo kafukufuku

Kaya ikukuthandizani kusankha ndalama zomwe mudzapeze pofufuza, kapena kujowina gulu la odwala pantchito yatsopano yofufuza, mutha kugwiritsa ntchito zomwe mwakumana nazo kuti mutithandize pamene tikufufuza zamankhwala ndi machiritso. Werengani zambiri

Latest

Lembetsani ku maimelo a umembala wa DEBRA

Lowani kuti mulandire zosintha kuchokera ku DEBRA za umembala wanu.
Othandizira a DEBRA UK, Paul Glover ndi Martyn Rowley, akweza £ 115,000 kwa mabanja omwe akukhala ndi EB

Lachiwiri pa Seputembara 3, othandizira odzipereka a DEBRA UK Paul Glover ndi Martyn Rowley adalandiridwa ku ofesi yayikulu ya DEBRA UK kukondwerera kupambana kwawo kwakukulu kokweza £115,000 mu 2024 kuthandiza omwe akukhala ndi EB.
DEBRA UK Challenge 2024

Seputembala uno, chonde thandizirani Graeme Souness pazovuta zake za 'BE the difference for EB'.
Graeme Souness CBE ndi Isla Grist akumana ndi banja la Barnaby Webber pa BBC Breakfast

Pa 21 Ogasiti 2024, Wachiwiri kwa Purezidenti wa DEBRA Graeme Souness CBE ndi Isla Grist, omwe amakhala ndi recessive dystrophic EB (RDEB), adawonekeranso pa BBC Breakfast.

Ambiri amawerenga

Pezani malo ogulitsa

Pezani sitolo yanu yapafupi ya DEBRA ndikuthandizira kulimbana ndi EB. Masitolo athu amagulitsa zovala zotsika mtengo komanso zapamwamba zomwe timakonda kale, mipando, zinthu zamagetsi, mabuku, zida zakunyumba ndi zina zambiri.
Kusonkhanitsa mipando

Perekani mipando yanu yosafunikira, zinthu zapanyumba ndi zamagetsi pogwiritsa ntchito ntchito yathu yaulere yotolera mipando. Pokhala ndi njira zotetezera, kupereka zinthu zanu sikungakhale kosavuta.
Zinthu zomwe sitigulitsa

Dziwani kuti ndi miyezo yaumoyo ndi chitetezo ndi zilembo zomwe tikufuna komanso zomwe sitingathe kugulitsa.
EB ndi chiyani?

Epidermolysis bullosa (EB) ndi matenda opweteka omwe amatuluka pakhungu popanda mankhwala. Dziwani za mitundu yosiyanasiyana ya EB, zomwe zimayambitsa, zizindikiro ndi mankhwala.
Graeme Souness akusambira English Channel kuti akweze £1.1m kuti athetse ululu wa EB

Graeme Souness, wosewera mpira wakale wapadziko lonse lapansi, manejala, komanso pundit, akusambira English Channel mwezi uno kuti akweze ndalama zokwana £1.1m kuti aletse kuwawa kwa epidermolysis bullosa (EB).
Lumikizanani nafe
Perekani zinthu

Perekani zinthu zanu zomwe munazikonda kale, kuphatikiza zovala, mipando ndi zida zapanyumba kuti zisatayidwe komanso kutithandiza kupeza ndalama zofunika kudzera m'masitolo athu. Dziwani zambiri za momwe mungaperekere zinthu lero.
Tizigwira nafe

DEBRA ikhoza kupitiriza ntchito yake yofunika ndi chithandizo ndi chilimbikitso cha anthu ammudzi komanso ndi khama la antchito ake ndi odzipereka.
Khalani membala

Ngati inu kapena wachibale mukukhala ndi EB, ndinu wosamalira kapena wina amene amagwira ntchito ndi anthu omwe akhudzidwa ndi EB, ndiye kuti mutha kukhala membala wa DEBRA. Dziwani momwe mungachitire.
Nkhani ya Isla

Ndife banja labwinobwino. Ana athu, Isla ndi Emily, amapita kusukulu, amakhala ndi anzawo ndipo amakonda kusewera pa trampoline. Koma m'modzi mwa ana anu akakhala ndi EB, muyenera kutanthauziranso bwino.