Nkhani

Othandizira a DEBRA UK, Paul Glover ndi Martyn Rowley, akweza £ 115,000 kwa mabanja omwe akukhala ndi EB

Lachiwiri pa Seputembara 3, othandizira odzipereka a DEBRA UK Paul Glover ndi Martyn Rowley adalandiridwa ku ofesi yayikulu ya DEBRA UK kukondwerera kupambana kwawo kwakukulu kokweza £115,000 mu 2024 kuthandiza omwe akukhala ndi EB. Werengani zambiri

Graeme Souness CBE ndi Isla Grist akumana ndi banja la Barnaby Webber pa BBC Breakfast

Pa 21 Ogasiti 2024, Wachiwiri kwa Purezidenti wa DEBRA Graeme Souness CBE ndi Isla Grist, omwe amakhala ndi recessive dystrophic EB (RDEB), adawonekeranso pa BBC Breakfast. Werengani zambiri

Mpira wa Gulugufe wa Albi wakweza ndalama zoposera £40,000 pa DEBRA

Ndife okondwa kulengeza kuti 'Mpira wa Gulugufe wa Albi', womwe udachitika Lachisanu pa Ogasiti 16 ku Coed y Mwstwr Hotel ku Bridgend, wakweza ndalama zokwana £42,000 ku DEBRA. Werengani zambiri

DEBRA UK imatsegula sitolo yatsopano ku South Queensferry

Lachisanu 16 Ogasiti tinali okondwa kutsegula sitolo ina yatsopano ku South Queensferry, Edinburgh. Kutsegulira kwathu kwachiwiri kwatsiku, sitolo yathu yatsopano ya Guildford idatsegulidwa m'mawa womwewo! Werengani zambiri

DEBRA UK imatsegula sitolo yatsopano ku Guildford

Lero (Lachisanu 16 Ogasiti) tinali okondwa kutsegula sitolo ina yatsopano ku Guildford, Surrey. Werengani zambiri

Simon Davies amakhala kazembe wa DEBRA UK

Ndife okondwa kulengeza kazembe wina watsopano wa DEBRA UK, ndi Simon Davies waposachedwa kwambiri kulowa nawo Team DEBRA! Werengani zambiri

Ngwazi zopezera ndalama Julayi 2024!

Tili ndi mwayi wokhala ndi gulu la othandizira omwe amatithandiza kudziwitsa anthu komanso kupereka ndalama kwa anthu omwe ali ndi EB. Nawa ochepa mwa ngwazi zathu zaposachedwa zopezera ndalama! Werengani zambiri

Mark Moring amakhala kazembe wa DEBRA UK

Ndife okondwa kulengeza kuti a Mark Moring avomera kukhala kazembe wathu watsopano wa DEBRA UK. Werengani zambiri

Wopereka ndalama pokumbukira Oliver Thomas amakweza £7,000 kuti athandize mabanja omwe ali ndi EB

Lachisanu 19th July, abwenzi a DEBRA UK kuphatikizapo Trustee Mick Thomas ndi mkazi wake Sarah adakondwerera tsiku lobadwa la 35 la mwana wawo Oliver. Werengani zambiri

Zoyankhulana za Graeme Souness ndi Isla Grist

Chiyambireni kuyankhulana kwawo pa BBC Breakfast, Graeme ndi Isla akhala akuzungulira mawayilesi ndi ma TV kuti adziwitse anthu za EB ndi zovuta za gululi. Werengani zambiri

Mtundu wachilimwe wa 'Impact' wafika!

Impact ndi kalata yothandizira ya DEBRA UK kawiri pachaka. M'kopeli, dziwani za momwe kuwolowa manja kwa othandizira athu kwathandizira gulu la EB mu theka loyamba la 2024. Werengani zambiri

Graeme Souness ndi Team DEBRA kuti atenge zovuta zatsopano kuti ABE kusiyana kwa EB

DEBRA UK Wachiwiri kwa Purezidenti Graeme Souness CBE ndi Team DEBRA abwerera mu Seputembala uno ndi zovuta zina za 'BE the difference for EB. Werengani zambiri

Scott Brown amakhala kazembe wa DEBRA UK

Ndife okondwa kudalira thandizo la Scott Brown, osewera wakale waku Scotland komanso osewera wa Celtic FC ngati kazembe wovomerezeka wa DEBRA UK. Werengani zambiri

Kusintha kwa Kotala kwa DEBRA 2024 Q2

Zosintha kuchokera ku bungwe lathu la matrasti, kuphatikiza zochitika zazikulu zomwe zidachitika muchigawo chachiwiri cha 2024, ndi kupita patsogolo komwe tikupanga KUKHALA kusiyana kwa EB. Werengani zambiri

DEBRA UK yakhazikitsa Lipoti la EB simplex (EBS) Impact Report

Lipoti lathu la EBS Impact Report limafotokoza mwachidule njira zambiri zomwe timathandizira anthu omwe ali ndi EBS masiku ano komanso mapulojekiti ofufuza omwe timapereka ndalama zomwe zingapindulitse gulu la EBS mwachindunji. Werengani zambiri

Ogwira ntchito ku DEBRA UK amapita ku Msonkhano Wapachaka wa British Association of Dermatologists (BAD).

DEBRA UK Director of Researching, Dr Sagair Hussain, ndi Director of Member Services, Claire Mather onse adapita ku Msonkhano Wapachaka wa British Association of Dermatologists (BAD) ku Manchester sabata yatha. Werengani zambiri

Filsuvez® yovomerezeka kuti igwiritsidwe ntchito ndi NHS Scotland kwa odwala EB

Tinali okondwa kulandira chitsimikiziro lero (Lolemba 8th July) kuti Filsuvez® yavomerezedwa kuti igwiritsidwe ntchito ndi NHS Scotland kwa odwala EB omwe ali ndi miyezi 6 kapena kuposerapo. Werengani zambiri

Mutha kukhala kusiyana mu kampeni yathu ya boma

Tsopano ndi mwayi wabwino wopezera chidwi cha MP/MS/MSP ndikuwonetsetsa kuti akudziwa za EB ndi zovuta zomwe anthu okhala ndi mitundu yonse ya EB amakumana nazo tsiku lililonse. Werengani zambiri

Lipoti la pachaka la DEBRA UK ndi maakaunti a 2023

Dziwani zambiri za momwe tidasinthira mu 2023, momwe tidapezera ndalama, komanso ntchito zomwe tidagwiritsa ntchito pothandizira gulu la UK EB. Werengani zambiri

Ngwazi zopezera ndalama June 2024!

DEBRA UK Wachiwiri kwa Purezidenti, Graeme Souness adapereka CBE

Ndife okondwa kumva kuti DEBRA Wachiwiri kwa Purezidenti waku UK, Graeme Souness wapatsidwa CBE pamndandanda waulemu wa tsiku lobadwa la Mfumu Yake. Werengani zambiri

Thandizani kuyimira EB chisankho cha 2024

Kuti tikuthandizeni kutsogolera zokambirana zilizonse zomwe mungakhale nazo ndi anthu ofuna zisankho mdera lanu, talembapo zomwe maboma ang'onoang'ono akufuna kuti tichite chisankho pa Lachinayi pa 4 Julayi 2024. Werengani zambiri

Ntchito zofufuzira zisanu ndi ziwiri za DEBRA UK zomwe zidamalizidwa mu 2023

Zotsatira za ntchito zofufuzazi zitha kupititsa patsogolo moyo wa anthu omwe ali ndi EB Werengani zambiri

DEBRA UK clay pigeon Challenge ikweza ndalama zokwana £35,000 kuti ikhale kusiyana kwa EB.

Magulu 17 adatenga nawo gawo pamasewera athu achisanu ndi chiwiri pa 23 May ku EJ Churchill Shooting Grounds. Werengani zambiri

Latest

Lembetsani ku maimelo a umembala wa DEBRA

Lowani kuti mulandire zosintha kuchokera ku DEBRA za umembala wanu.
Othandizira a DEBRA UK, Paul Glover ndi Martyn Rowley, akweza £ 115,000 kwa mabanja omwe akukhala ndi EB

Lachiwiri pa Seputembara 3, othandizira odzipereka a DEBRA UK Paul Glover ndi Martyn Rowley adalandiridwa ku ofesi yayikulu ya DEBRA UK kukondwerera kupambana kwawo kwakukulu kokweza £115,000 mu 2024 kuthandiza omwe akukhala ndi EB.
DEBRA UK Challenge 2024

Seputembala uno, chonde thandizirani Graeme Souness pazovuta zake za 'BE the difference for EB'.
Graeme Souness CBE ndi Isla Grist akumana ndi banja la Barnaby Webber pa BBC Breakfast

Pa 21 Ogasiti 2024, Wachiwiri kwa Purezidenti wa DEBRA Graeme Souness CBE ndi Isla Grist, omwe amakhala ndi recessive dystrophic EB (RDEB), adawonekeranso pa BBC Breakfast.

Ambiri amawerenga

Pezani malo ogulitsa

Pezani sitolo yanu yapafupi ya DEBRA ndikuthandizira kulimbana ndi EB. Masitolo athu amagulitsa zovala zotsika mtengo komanso zapamwamba zomwe timakonda kale, mipando, zinthu zamagetsi, mabuku, zida zakunyumba ndi zina zambiri.
Kusonkhanitsa mipando

Perekani mipando yanu yosafunikira, zinthu zapanyumba ndi zamagetsi pogwiritsa ntchito ntchito yathu yaulere yotolera mipando. Pokhala ndi njira zotetezera, kupereka zinthu zanu sikungakhale kosavuta.
Zinthu zomwe sitigulitsa

Dziwani kuti ndi miyezo yaumoyo ndi chitetezo ndi zilembo zomwe tikufuna komanso zomwe sitingathe kugulitsa.
EB ndi chiyani?

Epidermolysis bullosa (EB) ndi matenda opweteka omwe amatuluka pakhungu popanda mankhwala. Dziwani za mitundu yosiyanasiyana ya EB, zomwe zimayambitsa, zizindikiro ndi mankhwala.
Graeme Souness akusambira English Channel kuti akweze £1.1m kuti athetse ululu wa EB

Graeme Souness, wosewera mpira wakale wapadziko lonse lapansi, manejala, komanso pundit, akusambira English Channel mwezi uno kuti akweze ndalama zokwana £1.1m kuti aletse kuwawa kwa epidermolysis bullosa (EB).
Lumikizanani nafe
Perekani zinthu

Perekani zinthu zanu zomwe munazikonda kale, kuphatikiza zovala, mipando ndi zida zapanyumba kuti zisatayidwe komanso kutithandiza kupeza ndalama zofunika kudzera m'masitolo athu. Dziwani zambiri za momwe mungaperekere zinthu lero.
Tizigwira nafe

DEBRA ikhoza kupitiriza ntchito yake yofunika ndi chithandizo ndi chilimbikitso cha anthu ammudzi komanso ndi khama la antchito ake ndi odzipereka.
Khalani membala

Ngati inu kapena wachibale mukukhala ndi EB, ndinu wosamalira kapena wina amene amagwira ntchito ndi anthu omwe akhudzidwa ndi EB, ndiye kuti mutha kukhala membala wa DEBRA. Dziwani momwe mungachitire.
Nkhani ya Isla

Ndife banja labwinobwino. Ana athu, Isla ndi Emily, amapita kusukulu, amakhala ndi anzawo ndipo amakonda kusewera pa trampoline. Koma m'modzi mwa ana anu akakhala ndi EB, muyenera kutanthauziranso bwino.

Tag mtambo

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