Pitani ku nkhani

Blog

Blog yathu ndi malo oti mamembala a gulu la EB azigawana zomwe adakumana nazo pamoyo wawo wa EB. Kaya ali ndi EB okha, amasamalira wina yemwe ali ndi EB, kapena amagwira ntchito m'zachipatala kapena kafukufuku wokhudzana ndi EB.

Malingaliro ndi zokumana nazo za gulu la EB zomwe zidafotokozedwa ndikugawidwa kudzera muzolemba zawo za EB nkhani ndi zawozawo. Sikuti amayimira malingaliro a DEBRA UK. DEBRA UK siyiyankha pamalingaliro omwe adagawidwa mu EB nkhani blog. Malingaliro amenewo ndi a membala aliyense payekha.

Onetsani zosefera

Asayansi awiri ovala malaya a labu ndi magolovesi akukambirana mu labotale. Mmodzi ali ndi mbale ya petri, onse amavala magalasi, ndipo firiji yokhala ndi zikalata ikuwoneka kumbuyo.

20th February 2026 by Cy Grove

Zaka makumi awiri pambuyo pake: tafika pati polimbana ndi EB

Werengani zambiri

Mkazi akujambula selfie pagalasi ndi foni yake pomwe mtsikana wamng'ono akuyimirira pafupi naye, onse akumwetulira.

19th February 2026 ndi Katie Archer

Kumanganso kuchokera ku phulusa: momwe DEBRA adakhalira njira yathu yopulumutsira

Werengani zambiri

Mkazi wokhala ndi tsitsi lopepuka akutenga selfie m'mphepete mwa nyanja tsiku lowala, ndi mafunde ndi thambo labuluu loyera kumbuyo.

9th February 2026 by Emily White

Kukhala ndi EB Simplex: Mndandanda wa zisankho zokayikitsa (ndi chifukwa chake sindikudandaula ndi chilichonse mwa izo)

Werengani zambiri

Prerna Kadam, atavala malaya oyera a labu ndi magolovesi ofiirira, akuyimirira mu labotale, akuyang'ana kamera.

XUMUMU February 2 by Prerna Kadam

Kufulumizitsa kupezeka kwa mankhwala a khansa ku RDEB

Werengani zambiri

Munthu wovala ngati Santa Claus akukhala pa sofa yofiirira ndi mwana wakhanda ndi mwana wamng'ono, pomwe munthu wamkulu—akugawana nkhani ya EB ya amayi ake—akuyimirira kumbuyo kwawo, akumwetulira. Mitengo ya Khirisimasi ndi zokongoletsa zachikondwerero zimawalitsa maziko.

16th January 2026 ndi Natalie Stonehouse

Nkhani ya EB ya amayi

Werengani zambiri

Catherine Silk, wokhala ndi tsitsi lofiirira lopepuka mpaka paphewa, atavala top yakuda yopanda manja ndi mkanda, akumwetulira ataima m'nyumba.

23rd December 2025 ndi Catherine Silk

Zotsatira za kafukufuku wanga: ubwino ndi kulemera kwa mankhwala a EB

Werengani zambiri

Mwana wokhala ndi mawanga ofiira komanso okwiya pankhope pake amagwiridwa ndi munthu wamkulu atavala chovala chobiriwira, ndi nsalu yowala yomwe imaphimba mwanayo—kujambula mphindi kuchokera m'nkhani ya Darcie.

1st December December 2025 ndi Alice ndi Ben

Nkhani ya Darcie: kupeza kuwala usiku wamdima kwambiri

Werengani zambiri

Munthu wovala magalasi ndi malaya abuluu a labu waima pafupi ndi maikulosikopu pamalo a labotale, akukonza zitsanzo za kafukufuku wa nanogel.

19th November 2025 ndi Thomas Dunne

Nanogel gene therapy ya JEB

Werengani zambiri

Mayi wovala chovala cha labu ndi magolovesi a buluu akukhala pa benchi ya labotale yokhala ndi zida zasayansi, machubu oyesera, ndi zinthu zomwe zimawonekera kumbuyo, akugwira ntchito kuti abweretse chiyembekezo kwa JEB kudzera mu kafukufuku waluso.

13th November 2025 ndi Anna Ridgeway

Kumva ulendo wanu genetic diagnosis

Werengani zambiri