Pitani ku nkhani

Kafukufuku wathu

DEBRA UK ndi kampani yayikulu kwambiri ku UK yomwe ikupereka ndalama zofufuzira za epidermolysis bullosa (EB) . Tayika ndalama zoposa £24 miliyoni ndipo takhala ndi udindo, kudzera mu ndalama zoyambira kafukufuku komanso kugwira ntchito padziko lonse lapansi, pokhazikitsa zambiri zomwe zikudziwika tsopano zokhudza EB.

Infographic ikuwonetsa mapulojekiti ofufuza a 161, ofufuza 127, malo ofufuza 63 m'maiko 16, maphunziro 7 a PhD, mayeso 5 azachipatala, ndi ndalama zopitilira £24.5 miliyoni.

Tili ndi masomphenya a dziko lomwe palibe amene akudwala matenda opweteka a pakhungu otchedwa epidermolysis bullosa (EB). Njira yathu yofufuzira imayang'ana kwambiri zomwe zili zofunika kwa anthu omwe ali ndi EB. Cholinga chathu ndikupeza chithandizo chochepetsa zotsatira za EB za tsiku ndi tsiku, komanso machiritso othetsera EB. Tidzapereka ndalama zothandizira sayansi yapamwamba kwambiri padziko lonse lapansi yomwe ili ndi kuthekera kopereka chithandizo kwa odwala a EB.

Dzanja lovala magolovesi limayika galasi pansi pa maikulosikopu.

Ntchito zathu zofufuza za EB

DEBRA UK ndiye wopereka ndalama zambiri ku UK pa kafukufuku wa EB. Timapereka ndalama kwa ofufuza omwe ali ndi luso la sayansi ndi zamankhwala zogwirizana kwambiri ndi mabanja omwe ali ndi EB.
Onani ntchito zathu
Anthu amagwira ntchito mogwirizana patebulo lodzaza ndi ma laputopu, mapepala, makapu a khofi, ndi zolembera.

Njira yathu yofufuzira

Njira yathu yatsopano imayika zotsatira za odwala kutsogolo ndi pakati, ndikuyang'ana pa kafukufuku womasulira omwe angakhale ndi zotsatira zabwino kwa omwe ali ndi EB lero.
Dziwani zambiri
Anthu omwe amagwira ntchito pa ma chart a bizinesi ndi ma graph pa desiki, pogwiritsa ntchito laputopu, notepad, ndi foni.

Mphamvu zathu

Takhala ndi udindo, kudzera mukupereka ndalama pa kafukufuku wosintha moyo, pakukhazikitsa zambiri zomwe zimadziwika tsopano za EB.
Dziwani zambiri
Mtsogoleri wa Kafukufuku wa DEBRA, Dr Sagair Hussain.

Gulu lathu lofufuza

Kumanani ndi Dr Sagair Hussain - Director of Research and Dr Abi Witherden - Research Grants Manager.
Kumanani ndi gululi
Manja awiri atavala magolovesi oyera, oyimira chithandizo chamankhwala ndi ochita kafukufuku, akugwirana chanza pamdima.

Othandizira athu ofufuza ndi othandizira

Timayanjana ndikugwira ntchito limodzi ndi akatswiri apamwamba padziko lonse lapansi ndi mabungwe omwe ali ndi chidwi chofanana ndi EB ndi zikhalidwe zina zapakhungu.
Kumanani ndi anzathu
Munthu wovala zovala zoyera, wofanana ndi wina wochokera ku bwalo la mayesero a zachipatala, ali ndi mapiritsi ofiira m'dzanja lamanzere ndi piritsi ya buluu kumanja, manja akuyang'ana mmwamba.

Zovuta zachipatala

Pezani zambiri zamayesero azachipatala, sayansi kumbuyo kwa kafukufuku wa EB, momwe mankhwala amavomerezera, ndi zina zothandiza.
Dziwani zambiri
Munthu akugwira chithunzi cha m'manja chojambulidwa ndi dziko lapansi lokhala ndi nkhope zosiyanasiyana za anthu.

Maphunziro athu ozindikira

Maphunziro awa amapereka chidziwitso chofunikira chokhudza zosowa zomwe mamembala a DEBRA sanakwaniritse, zomwe ndizofunikira pa kafukufuku, komanso kuwunika ntchito za mamembala athu.
Maphunziro athu ozindikira

Kodi mumadziwa…?

Ngati ndinu ofufuza akugwira ntchito pa EB, mutha kukhala membala wa DEBRA UK. Umembala ndi waulere ndipo umakupatsani mwayi wopezekapo ndi zochitika kuti mulumikizane ndi ena amgulu la EB.
Khalani membala wa DEBRA
Chizindikiro cha DEBRA UK. Chizindikirocho chimakhala ndi zithunzi za gulugufe wabuluu komanso dzina la bungwe. Pansi pake, mawu akuti "The Butterfly Skin Charity.
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