Kumanani ndi gulu lofufuza la DEBRA UK
Dr Sagair Hussein amatsogolera kafukufuku wathu ku DEBRA UK, kubweretsa zaka zambiri za 25 mu kafukufuku wamankhwala ndi kudzipereka kwakukulu pakusintha miyoyo ya anthu omwe ali ndi EB. Ndi PhD mu Molecular Biology, MSc in Genetics, ndi Executive MBA, Sagair amaphatikiza ukatswiri wa sayansi ndi masomphenya anzeru kuti athandizire kusintha kofunikira.
Asanalowe DEBRA, adakhala ngati Director of Research at the British Association of Dermatologists, komwe adalimbikitsa kafukufuku wa khungu ku UK. Ntchito yake yadutsa m'mayunivesite apamwamba, sayansi ya sayansi ya sayansi ya sayansi ya zamankhwala, ndi sayansi ya data - zomwe zimamupatsa malingaliro apadera amomwe angasinthire sayansi yotsogola kukhala mayankho adziko lenileni.
Kuphatikiza pa udindo wake ku DEBRA, Sagair alinso Mlembi / Msungichuma wa Dermatology Council of England, komwe amathandizira kukonza tsogolo la kafukufuku wa dermatology ndi chisamaliro m'dziko lonselo.
Sagair ali ndi chidwi chowonetsetsa kuti kafukufuku amabweretsa zotsatira zenizeni-mankhwala abwino, chisamaliro chabwino, ndipo pamapeto pake, mankhwala a EB.
Dr Abi Witherden imayang'anira njira zathu zoperekera mphotho za kafukufuku ku DEBRA. Kuyambira kulawa koyambirira kwa kafukufuku pa digiri yake yoyamba ku yunivesite ya Cambridge, kupyolera mu PhD ku Imperial College ndi zaka khumi za kafukufuku wa biology mu mayunivesite apamwamba a London, Abi zimabweretsa chidziwitso chambiri komanso kumvetsetsa kwa kafukufuku wamaphunziro ku DEBRA.
Asanalowe DEBRA, Abi adakhala zaka zisanu ndi chimodzi akulimbikitsa kutengapo gawo kwa odwala mu NHS. Adakhala wapampando wa South Tees Maternity Voices Partnership panthawi ya mliri wa COVID-19 ndipo adayimira mawu ogwiritsira ntchito North East England ku North East ndi North Cumbria Local Maternity and Neonatal System.
Abi akudzipereka kwambiri kuonetsetsa kuti kafukufuku wa EB akupereka zopindulitsa kwa anthu omwe akuzifuna kwambiri. Iye ali wokonda kumva ndi kuyamikira mawu a mabanja omwe amakhala ndi EB, kuwonetsetsa kuti zomwe akumana nazo zimapanga ndikuyendetsa zofunikira pakufufuza za DEBRA.