Pitani ku nkhani

Sakani ma webinars, nkhani, mabulogu, ma podcasts & makanema

Zosintha kuchokera kwa ofufuza athu ndi akatswiri azachipatala komanso maulalo azinthu zamakanema ndi zomvera.

Mbiri yabuluu yokhala ndi mawu: "Zotsatira za kafukufuku ndi Zaumoyo. Dziwani zatsopano mu kafukufuku wa EB, phunzirani za mitu yomwe ili yofunika kwa gulu la EB, ndipo mafunso anu ayankhidwe ndi akatswiri." Chizindikiro cha Debra kumanja.

Research and Health webinars

Mndandanda wathu wapaintaneti wa Research and Health uli ndi alendo osiyanasiyana omwe amalankhula za ukadaulo wawo mu kafukufuku wa EB ndi chisamaliro chaumoyo.

Yang'anani tsopano

Matailosi opukutira "BLOG" pamtunda wamatabwa akukupemphani kuti mufufuze zatsopano mu kafukufuku wa EB.

Research blog

Blog yathu yofufuza za EB imapereka zolemba zanzeru zomwe zimalowera m'zinthu zotsogola, zamankhwala otsogola, ndi zovuta zomwe anthu omwe akufuna kupeza chithandizo amakumana nazo.

Werengani zambiri

Kanema wofufuza

Dziwani zambiri za kafukufuku wa EB wothandizidwa ndi DEBRA ndiukadaulo wofufuza ndi makanema kuchokera kwa akatswiri athu ofufuza ndi zina zambiri.

Yang'anani tsopano

Kapu ya khofi, foni yam'manja yowonetsa zatsopano pa kafukufuku wa EB, ndi magalasi ammaso amakhala patebulo lamatabwa pafupi ndi nyuzipepala yopindidwa.

Zotsatira za kafukufuku wa EB

Khalani odziwitsidwa ndi kupita patsogolo kwaposachedwa mu kafukufuku wa Epidermolysis Bullosa (EB).

Werengani zambiri

Maikolofoni pamayimidwe moyang'anizana ndi maziko abuluu okhala ndi kuwala kowoneka bwino.

Podcasts

Kulikonse komwe muli, zilizonse zomwe mungafune, mverani nkhani zaposachedwa za EB ndi nkhani za anthu omwe amakhala ndi EB ndi ma podcasts omwe timakonda.

Tamverani tsopano