Pitani ku nkhani

Research and Health webinars

Chithunzi cha banner cha "Research and Health webinar series" yolembedwa ndi Debra, yoyang'ana kwambiri mitu yokhudzana ndi gulu la EB, yokhala ndi Q&A katswiri.

Zolemba zathu zapaintaneti za Research and Health zimayendetsedwa ndi DEBRA UK Director of Researcher Dr Sagair Hussain ndipo amakhala ndi alendo osiyanasiyana omwe akulankhula za ukadaulo wawo mu kafukufuku wa EB ndi chisamaliro chaumoyo. Magawo awa adzakhala mwayi wabwino wophunzirira mitu yosiyanasiyana yokhudzana ndi EB, ndikuyankha mafunso anu ndi akatswiri. Iwo ndi otseguka kwa onse ndipo okamba athu amafuna kugwiritsa ntchito chinenero chosavuta koma adzapereka mwayi womvetsetsa kafukufuku wa EB ndi chisamaliro chaumoyo mozama kwambiri.

Lembetsani ma webinars omwe akubwera ndikuwona zojambulidwa kuchokera ku zochitika zam'mbuyomu pansipa. 

 

Ma Webinar akubwera

Mkazi wokhala ndi tsitsi lalitali lofiirira ndi magalasi, atavala bulawuzi yobiriwira, akumwetulira kamera mozungulira ngati pinki, wokonzeka kugawana nzeru kuchokera ku ma webinar ofufuza ndi azaumoyo.
Dokotala Emily Gorrell

Lowani ndi Dr Emily Gorrell, Pulofesa Wothandizira wa Dermatology ku University of Colorado, nthawi yomaliza ya 8pm.

Lowani nawo webinar kuti mudziwe zambiri ndikufunsani mafunso okhudza…

  • Chithandizo cha majini chomwe chimachitika pa maselo omwe ali kunja kwa thupi
  • Mayeso azachipatala pa chithandizo cha majini
  • Kupita patsogolo kwapano

Lembetsani ku webinar yathu ya June

Zambiri za olankhula pa webinar iyi:

Dr. Emily Gorell ndi Pulofesa Wothandizira wa Dermatology ku Yunivesite ya Colorado, komwe amagwira ntchito yothandiza odwala omwe ali ndi matenda otupa komanso matenda ovuta a khungu ndipo amagwira ntchito ngati Mtsogoleri Wachiwiri wa Kafukufuku wa Zachipatala. Dr. Gorell wakhala akugwira ntchito yofufuza za mankhwala a epidermolysis bullosa kwa zaka zoposa 15, makamaka mankhwala a majini. Amaona odwala ku Chipatala cha Ana ku Colorado ndi Chipatala cha University of Colorado, poganizira kwambiri kusintha kwa chisamaliro ndi chithandizo cha akuluakulu omwe ali ndi EB ndi matenda ena ovuta a khungu.

 

A man with glasses and a moustache wearing a black shirt stands outdoors with blurred trees in the background, perhaps preparing to share insights from research and health webinars.
Dr Nicholas Veldhuis

Join Assistant Professor Dr Nicholas Veldhuis, ARC Future Fellow and co-group leader at the Monash Institute of Pharmaceutical Sciences in Melbourne, Australia, at the usual time of 1pm.

Lowani nawo webinar kuti mudziwe zambiri ndikufunsani mafunso okhudza…

  • Modelling the symptoms of DDEB
  • How neuro-immune networks influence inflammation and chronic pain
  • Drug discovery for pain and itch

Register for our July webinar

Zambiri za olankhula pa webinar iyi:

A/Prof Nik Veldhuis is an ARC Future Fellow and co-group leader with A/Prof Daniel Poole at the Monash Institute of Pharmaceutical Sciences in Melbourne, Australia. He has a longstanding interest in drug discovery, drug delivery and understanding the biology of pain and neuroinflammation. Supported by federal funding, industry partnerships, and DEBRA UK, Australia, and Austria, his current research utilises novel cell signalling sensors, microscopy, multiomics and behavioural studies to reveal how neuro-immune networks influence inflammation and chronic pain.

Tsatanetsatane wotsatira

Yang'anani zojambula zam'mbuyo zapaintaneti

Lachitatu 13 May 2026

Mitundu ya EB: momwe mankhwala amayesedwera mayeso asanapitirire

Lowani ndi Dr Matthew Caley, Mphunzitsi Wamkulu mu Cell Biology ku Queen Mary University of London (UK).

Dziwani zambiri za:

  • Kodi chitsanzo cha EB ndi chiyani?
  • Momwe mitundu ya khungu la EB imapangidwira mu labotale
  • Kufunika koyesa njira zochiritsira zomwe zingatheke m'mamodeli musanapereke kwa anthu omwe akuyesedwa kuchipatala.

Lachitatu 1 Epulo 2026

Kuyambira kusintha majini mpaka kukonza khungu: chiyembekezo kwa anthu omwe ali ndi EB yayikulu

Lowani ndi Dr Laura De Rosa, pulofesa wothandizira wa sayansi ya zamoyo ku yunivesite ya Modena ndi Reggio Emilia (Italy), nthawi yanthawi zonse ya 1 koloko masana.

Lowani nawo pa webinar kuti mudziwe zambiri zokhudza…

  • Cholowa chachikulu cha EB - kuchokera kwa kholo limodzi lomwe lili ndi EB (osati makolo awiri osakhudzidwa monga momwe zilili ndi cholowa cholowa cholowa).
  • Momwe kusintha majini kungagwirire ntchito pazochitika zazikulu.
  • Kupita patsogolo kwa njira zosinthira majini ndikugwiritsa ntchito njirazi kuti abwezeretse mphamvu ya khungu la EBS.

Lachitatu 4 March 2026

Mphamvu ya chithandizo cha Nrf2 activators ya EBS

Lowani Pulofesa Albena Dinkova-Kostova, Pulofesa wa Zamoyo Zachilengedwe ku Yunivesite ya Dundee School of Medicine (UK).

Onerani zojambula za webinar kuti mudziwe za…

  • Momwe maselo a khungu la EBS amayankhira kutupa
  • Kupanga njira zodzitetezera ku matenda aakulu
  • Udindo wa Nrf2, puloteni yomwe imakhudzidwa ndi mayankho a kutupa, ndi momwe ingagwiritsidwire ntchito mu EBS

Lachiwiri 4 February 2026

Kujambula zithunzi pa laminin 332: Momwe kujambula zithunzi kwapamwamba kumatithandizira kumvetsetsa EB

Lowani ndi Dr Kevin Hamill, mphunzitsi wamkulu wa sayansi ya maso ndi maso ku University of Liverpool, UK.

Onerani zojambula za webinar kuti mudziwe za…

  • Microscopy yodziwika bwino kwambiri kuti muwone mapuloteni omwe ali mu EB
  • Puloteni laminin 322 yomwe imakhudzidwa mu JEB
  • Udindo wa laminin 322 m'maso, ndi kutayika kwa masomphenya mu JEB

Lachitatu 14 January 2026

Kulimbitsa ndi kupereka zizindikiro za mapuloteni m'maselo a khungu

Lowani ndi Dr Kristin Seltmann, Katswiri Wamkulu wa Sayansi ku ETH Zurich.

Onerani zojambula za webinar kuti mudziwe za…

  • Momwe ma cell a khungu a EBS amafooketsedwa chifukwa chosowa keratin
  • Momwe maselo a khungu amalankhulirana
  • Momwe ma vesicles amathandizira kulumikizana pakati pa maselo a khungu
  • Momwe ma vesicle-mediated signing amathandizira ku matenda a khungu 

Lachitatu 3 December

Njira zochizira matenda a EB Simplex

Lowani Pulofesa Bishr Omary, Pulofesa wa Sayansi ya Zamankhwala, komanso Wachiwiri kwa Chancellor wa Maphunziro ndi Kafukufuku ku Rutgers University, USA.

Onerani zojambula za webinar kuti mudziwe za…

  • Puloteni ya pakhungu, keratin, imakhudzidwa ndi EB Simplex (EBS)
  • Kuwunika kwa mankhwala a EBS
  • Kufotokozera mankhwala omwe angakhalepo a EBS

Lachitatu 5 November

Makina opanga minofu yaumunthu a EB Simplex kuti apeze njira zatsopano zochiritsira

Lowani nawo Dr Cory Simpson, MD, PhD, FAAD (iye), Pulofesa Wothandizira mu Dipatimenti ya Dermatology ku yunivesite ya Washington ku Seattle.

Onerani zojambula za webinar kuti mudziwe za…

  • Kukula ma cell akhungu kukhala mtundu wa 3D wa khungu
  • Kugwiritsa ntchito kusintha kwamtundu wa CRISPR mumitundu yapakhungu ya 3D
  • Kupeza ndi kuyesa mankhwala atsopano a EB

Lachitatu 1 Okutobala

Umoyo Wathu Wamtsogolo: kafukufuku waumoyo ndi gulu la EB

Lowani nawo Anna Curson (Strategic Partnership Manager), Caroline Collins (Strategic Partnership Manager) ndi Kate Harvey (Mtsogoleri wa Otenga nawo Mbali ndi Kuphatikizidwa Kwa Anthu) kuchokera ku Future Health Yathu.

Onerani zojambula za webinar kuti mudziwe za…

  • Kodi Thanzi Lathu la Tsogolo Lathu ndi Chiyani komanso chifukwa chake lili lofunikira
  • Zomwe zingapereke pakufufuza kwa EB ndi momwe mungatengere nawo mbali
  • Zomwe otenga nawo mbali anena komanso komwe angadziwe zambiri

Lachitatu 9 Julayi

Ma RNA amawongolera mphamvu zomata pakukonzanso khungu

Lowani nawo Dr Svitlana Kurinna, MRC Fellow ndi mtsogoleri wa gulu ku yunivesite ya Manchester, UK, Division of Cell Matrix ndi Regenerative Medicine.

Onerani zojambula za webinar kuti mudziwe za…

  • Mapuloteni ndi mamolekyu a RNA amagwira ntchito limodzi m'maselo a khungu
  • Kuyeza mphamvu zomatira (kumata) pakati pa ma cell pakusinthika ndi kukonza khungu
  • Kuphatikizika kwa ma RNA ang'onoang'ono (miRNA) pakumamatira kumtunda ndi kumunsi kwa khungu limodzi (kumamatira pamphepete mwa epidermal-dermal junction)

Lachinayi 5 Juni

Demystifying Palliative and End-of-Moyo Care: Kupititsa patsogolo Ubwino wa Moyo

Lowani nawo Dr Mark Popenhagen, Pulofesa Wothandizira mu Dipatimenti ya Anesthesiology–Pediatric Anesthesiology pa University of Colorado School of Medicine ndi Associate Director of Pain Services–Pain Psychology pa Children's Hospital Colorado, ku United States.

Onerani zojambula za webinar kuti mudziwe za…

  • Chisamaliro chamitundumitundu ndikuwongolera zizindikiro mu EB
  • Chisamaliro chapalliative ndi mapeto a moyo kwa anthu omwe ali ndi EB
  • Chisoni ndi kuferedwa

Lachitatu 7 Meyi

Kuchepetsa EB scarring ndi zizindikiro mkamwa

Lowani nawo Dr Tom Robinson, Pulofesa Wothandizira wa Healthcare Technologies ku Yunivesite ya Birmingham, UK.

Onerani zojambula za webinar kuti mudziwe za…

  • Zizindikiro za mkamwa mu EB
  • Mamolekyu akuluakulu a shuga - ma polysaccharides
  • Kupanga mankhwala opopera a polysaccharide a EB

 

 

Lachitatu 2 Epulo

Tsitsi lamutu - malo amthupi otetezedwa ku matuza mu EB?

Lowani nawo Prof Desmond Tobin, Mtsogoleri wa Charles Institute of Dermatology ku University College Dublin.

Onerani zojambula za webinar kuti mudziwe za…

  • Kutengapo gawo kwa tsitsi ndi m'mutu mu EB
  • Zomwe zimateteza khungu la m'mutu kuti lisatuluke
  • Kupanga mankhwala oteteza khungu lokhala ndi matuza

Lachitatu 5 Marichi

RDEB mabala ndi khansa mu nthawi ya ma multiomics

Lowani nawo Dr Ines Sequeira, Mphunzitsi wamkulu pa Queen Mary University London, UK.

Onerani zojambula za webinar kuti mudziwe za…

  • Machiritso ndi zipsera mkamwa
  • Kuzindikira njira zatsopano zothandizira EB pakamwa ndi khungu kuchira
  • Matekinoloje apamwamba kwambiri a multiomics mu EB

Lachitatu 5 February

Kuwona kupezeka kwa mankhwala mu EB

Lowani nawo Dr Roland Zauner, Wotsogolera Kupeza Mankhwala Osokoneza Bongo & Kubwezeretsanso ku EB Haus, Salzburg, Austria.

Onerani zojambula za webinar kuti mudziwe za…

  • Zochizira zoyembekezeka za EB
  • Kuwunika mankhwala kuti muzindikire mankhwala atsopano a EB
  • Zatsopano zamakono pakupeza mankhwala osokoneza bongo

Lachiwiri pa 28 Januware

Mavuto a m'mimba mu EB

Lowani nawo Dr David Brumbaugh, MD MSCS FAAP, Pulofesa Wothandizira pa University of Colorado School of Medicine, ndi Chief Medical Officer ku Children's Hospital Colorado USA.

Onerani zojambula za webinar kuti mudziwe za…

  • Mavuto am'mimba okhudzana ndi EB
  • Zotsatira za zizindikiro za m'mimba mwa ana ndi akuluakulu omwe ali ndi EB
  • Njira zochizira zomwe EB imayambitsa ndi chimbudzi

Lachitatu 4 December 2024

Chitetezo cha mthupi ndi khungu

Lowani nawo Dr Emma Chambers, wofufuza komanso mphunzitsi pa Queen Mary's University, London. 

Onerani zojambula za webinar kuti mudziwe za…

  • 'gulu lathu lankhondo lachilengedwe' - maselo a chitetezo chamthupi ndi mapuloteni
  • Momwe maselo a chitetezo chamthupi ndi mapuloteni amapangira kutupa pakhungu lathu
  • Momwe mankhwala oletsa kutupa angagwire ntchito mu EB

Lachitatu 6 Novembara 2024

Zofunikira pazamankhwala a jini ndi ma cell a EB

Lowani nawo Dr Su Lwin, dokotala wa khungu komanso mphunzitsi wolemekezeka ku St John's Institute of Dermatology ndi King's College London. 

Onerani zojambula za webinar kuti mudziwe za…

  • Sayansi kumbuyo kwa gene Therapies kwa EB
  • Momwe chithandizo cha stem cell chingathandizire zizindikiro za EB
  • Momwe machiritsowa amagwirira ntchito

 

Lachitatu 2 Okutobala 2024

Momwe kupuma kungakhudzire ndi EB

Lowani nawo Dr Rob Hynds, Senior Research Fellow ku University College London. 

Onerani zojambula za webinar kuti mudziwe za…

  • Momwe mitundu yosiyanasiyana ya EB ingakhudzire kupuma ndi mapapo.
  • Chithandizo cha ma cell ndi majini omwe angagwiritsidwe ntchito kuthandiza anthu omwe ali ndi EB.
  • Chithandizo Chatsopano Gulu la Dr Hynds likuyesetsa kuthandiza anthu omwe ali ndi EB pakupuma kwawo. 

Lachitatu 4 September 2024

Uphungu wa Genetic ndi Kathryn Moore

Lowani nawo Kathryn Moore, mlangizi wa chibadwa ku Yorkshire Regional Genetic Service yochokera ku Leeds.

Onerani zojambula za webinar kuti mudziwe za…

  • Zotsatira za cholowa cha EB
  • Zosankha za makolo zoyezera majini asanatenge mimba
  • Kuyeza ma genetic pa nthawi ya mimba

chonde dziwani: Ma webinars a kafukufuku ndi Zaumoyo adapangidwa mosiyana ndi zochitika zathu zina zapaintaneti pamene tikhala tikujambula olankhula ndi alendo. Kuti mukhale otetezeka komanso otetezeka pa intaneti, simudzatha kugwiritsa ntchito kamera yanu kapena kucheza ndi anthu ena.