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Mgwirizano wamakampani
Mgwirizano wamakampani umagwira ntchito yofunika kwambiri paulendo wopita #StopThePain of EB. Kugwirizana kwamakampani ndi DEBRA kumatha kukhala kwanzeru komanso kosintha kwa kampani yanu ndi DEBRA, kulimbikitsa antchito anu ndikuthandizira kampani yanu kukwaniritsa zolinga zanu za ESG.
Ndi chithandizo chanu tikhoza kupanga lero kwa anthu okhala ndi mitundu yonse ya EB ndikupereka chiyembekezo chenicheni cha a tsogolo lopanda ululu.
Kusiyana kwathu kwa BE kusiyana kwa EB kukufuna kukweza £5m kuti mupereke chisamaliro chokhazikika cha EB ndi chithandizo lerondipo mankhwala othandiza amitundu yonse ya EB mawa. Ndi ndalama izi tikukonzekera:
- kupereka upangiri wa akatswiri azamisala ndi zothandizira ku gulu la EB.
- kupereka ndalama zambiri zothandizira ku gulu la EB kuphatikiza ndalama zogulira zinthu zapadera kuti muchepetse zizindikiro za EB, ndi zopereka ndi/kapena kusaina ku chithandizo chandalama chomwe chilipo kuwonetsetsa kuti membala aliyense atha kupezeka pamisonkhano yawo yofunika yachipatala ya EB.
- kupereka mwayi wapadziko lonse ku gulu lothandizira la DEBRA UK EB kuphatikiza pulogalamu ya zochitika zachigawo za EB Connect.
- pitirizani kutero kufulumizitsa pulogalamu yathu yokonzanso mankhwala pamene tikufuna kupeza chithandizo chamankhwala chamtundu uliwonse wa EB.
Tsitsani kabuku kathu kamgwirizano wamakampani
Kapena chonde funsani Ann Avarne, Corporate Partnerships Manager, kuti mudziwe zambiri.
"Choyipa kwambiri pa EB ndi ululu. Ululuwu ndi wodabwitsa, ndi ululu wa tsiku ndi tsiku umene sutha. Ndiye pali kuyabwa. Masiku ena kulibe kuyabwa ndipo nthawi zina ndimakhala ndi masiku omwe sindingathe kusiya kuyabwa. Mabala a khungu langa, kuphatikizika kwa zala zanga, ndi kuwonongeka kwa minofu ya khungu langa zidzangowonjezereka pamene ndikukula zomwe zidzapangitsa moyo kukhala wovuta kwambiri kwa ine. Ichi ndichifukwa chake ndikufuna chithandizo chamankhwala chothandiza komanso machiritso a EB. ”
Fazeel Irfan, wazaka 17
Amakhala ndi recessive dystrophic epidermolysis bullosa (RDEB)
Kampani yanu ikhoza kutengapo gawo ndi kukhala kusiyana kwa EB
Kupereka kwamakampani makamaka kumapangitsa kusiyana kowonekera, kowoneka bwino popereka ndalama zofunikira kumadera anayi omwe ali ofunikira kwa anthu okhala ndi EB.
Kafukufuku wochita upainiya kuphatikiza kuyika ndalama pamapulogalamu obwezeretsanso mankhwala omwe cholinga chake ndi kupeza chithandizo chamankhwala chamtundu uliwonse wa EB.
Chisamaliro ndi chithandizo chopititsa patsogolo moyo wa anthu ndi mabanja omwe ali ndi EB.
Kupyolera mu mwayi wa mamembala opeza ndalama zothandizira nyumba zatchuthi za DEBRA UK zomwe zili ku UK.
DEBRA UK imagwira ntchito mogwirizana ndi NHS kuti ipereke chithandizo chaumoyo cha EB.
Bwanji tsopano?
"Tikukhala m'nthawi yaukadaulo waukulu wasayansi ndi zamankhwala, zomwe zapanga mwayi weniweni wopita patsogolo mu kafukufuku wa EB pazamankhwala am'tsogolo, koma chithandizochi chikufunika tsopano; odwala omwe ali ndi EB sangathe kudikira, amafunika kuwongolera bwino zizindikiro, kukhala ndi moyo wabwino, komanso chiyembekezo chenicheni chakuti mankhwala apezeka posachedwa. Ndi chithandizo chanu titha kufulumizitsa mayendedwe ndi kukula kwa kafukufuku wathu wamankhwala ndipo palimodzi titha kukwaniritsa ulendo wofunikira komanso wofunikirawu wosintha miyoyo ndikuthetsa kuvutika. "
Tony Byrne, CEO DEBRA UK