Mgwirizano wamakampani
Mgwirizano wamakampani ndi DEBRA ndi woposa kuthandiza anthu. Ndi mgwirizano wamphamvu womwe umabweretsa phindu lenileni ku bizinesi yanu komanso kusintha miyoyo. Pamodzi, titha kupereka chithandizo chofunikira kwa anthu omwe ali ndi Epidermolysis Bullosa (EB) lero ndikupereka ndalama zofufuzira zatsopano zomwe zimabweretsa chiyembekezo cha tsogolo labwino.
Mwa kugwirizana nafe, kampani yanu ikhoza:
- Thandizani anthu kuti akhudzidwe mwa kutithandiza kukonza chisamaliro ndi moyo wabwino kwa omwe akhudzidwa ndi EB.
- Thandizani kupanga zinthu zatsopano kudzera mu kafukufuku cholinga chake ndi kupeza mankhwala othandiza komanso, pamapeto pake, mankhwala.
- Limbikitsani mbiri ya mtundu wanu mwa kugwirizana ndi cholinga chomwe chimalimbikitsa antchito, makasitomala, ndi omwe akukhudzidwa.
- Chitani nawo magulu anu kudzera m'lingaliro kusonkhetsa ndalama ndi kudzipereka mwayi.
Tigwirizaneni popanga dziko lomwe palibe amene akuvutika ndi EB.
Tsitsani kabuku kathu kamgwirizano wamakampani
Kapena chonde funsani Ann Avarne, Corporate Partnerships Manager, kuti mudziwe zambiri.
"Choyipa kwambiri pa EB ndi ululu. Ululuwu ndi wodabwitsa, ndi ululu wa tsiku ndi tsiku umene sutha. Ndiye pali kuyabwa. Masiku ena kulibe kuyabwa ndipo nthawi zina ndimakhala ndi masiku omwe sindingathe kusiya kuyabwa. Mabala a khungu langa, kuphatikizika kwa zala zanga, ndi kuwonongeka kwa minofu ya khungu langa zidzangowonjezereka pamene ndikukula zomwe zidzapangitsa moyo kukhala wovuta kwambiri kwa ine. Ichi ndichifukwa chake ndikufuna chithandizo chamankhwala chothandiza komanso machiritso a EB. ”
Fazeel Irfan, wazaka 17
Amakhala ndi recessive dystrophic epidermolysis bullosa (RDEB)
Kampani yanu ikhoza kutengapo gawo ndi kukhala kusiyana kwa EB
Kupereka kwamakampani makamaka kumapangitsa kusiyana kowonekera, kowoneka bwino popereka ndalama zofunikira kumadera anayi omwe ali ofunikira kwa anthu okhala ndi EB.
Kafukufuku wochita upainiya kuphatikiza kuyika ndalama pamapulogalamu obwezeretsanso mankhwala omwe cholinga chake ndi kupeza chithandizo chamankhwala chamtundu uliwonse wa EB.
Chisamaliro ndi chithandizo chopititsa patsogolo moyo wa anthu ndi mabanja omwe ali ndi EB.
Kupyolera mu mwayi wa mamembala opeza ndalama zothandizira nyumba zatchuthi za DEBRA UK zomwe zili ku UK.
DEBRA UK imagwira ntchito mogwirizana ndi NHS kuti ipereke chithandizo chaumoyo cha EB.
Bwanji tsopano?
"Tikukhala m'nthawi yaukadaulo waukulu wasayansi ndi zamankhwala, zomwe zapanga mwayi weniweni wopita patsogolo mu kafukufuku wa EB pazamankhwala am'tsogolo, koma chithandizochi chikufunika tsopano; odwala omwe ali ndi EB sangathe kudikira, amafunika kuwongolera bwino zizindikiro, kukhala ndi moyo wabwino, komanso chiyembekezo chenicheni chakuti mankhwala apezeka posachedwa. Ndi chithandizo chanu titha kufulumizitsa mayendedwe ndi kukula kwa kafukufuku wathu wamankhwala ndipo palimodzi titha kukwaniritsa ulendo wofunikira komanso wofunikirawu wosintha miyoyo ndikuthetsa kuvutika. "
Tony Byrne, CEO DEBRA UK
