Kampeni Yopereka Mankhwala ku EB

Kodi mwakumana ndi zotani pankhani ya mankhwala a EB? Tili kumayambiriro kokonza kampeni yokhudza nkhani za anthu kuti tithetse mavuto omwe mamembala athu ambiri amakumana nawo akamayesa kupeza mankhwala a EB omwe amafunikira. Kuti titsimikizire kuti kampeniyi ikugwirizana ndi zochitika zenizeni komanso ikuyang'ana kwambiri kusintha komwe kuli kofunika kwambiri, tikufuna kumva kuchokera kwa inu.

Mamembala akulowa nawo mu zokambirana: Zimene tinamva

Mamembala 7 adalowa nawo gulu lathu laposachedwa mu February kuti akambirane za mavuto okhudzana ndi mankhwala a EB kuti athandizire kampeni yathu yatsopano. Malingaliro omwe adagawidwa anali othandiza kwambiri ndipo adasintha kale njira ya kampeniyi.

Mitu iwiri yomveka bwino inabuka:

• Kulephera: Mavuto azachuma omwe amabwera chifukwa chopita ku malo ochitira opaleshoni ya EB komanso mavuto azachuma omwe amabwera chifukwa chokhala ndi EB.
• Kupereka Mankhwala Mogwirizana: Mamembala ena akupitilizabe kukumana ndi mavuto ndi kusintha kwa mankhwala kwa madokotala popanda malangizo a zachipatala. Mayankho omwe angakhalepo ndi monga kupititsa patsogolo maphunziro a madokotala ndi kulimbikitsa DHSC/ICB kuti zitsimikizire kuti palibe kusintha komwe kumachitika popanda thandizo la madokotala a EB.

Malingaliro awa akutithandiza kukonza cholinga chathu cha kampeni, cholinga chake ndi kupambana kothandiza komanso kothandiza komwe kumathandiza anthu ammudzi mwathu mwachindunji. Tidzakudziwitsani pamene kampeni ikupita patsogolo.

Tikayambitsa kampeniyi, tidzayang'ana zitsanzo zenizeni za mamembala a mavuto omwe mukukumana nawo. Ngati mukufuna kutenga nawo mbali mu zokambiranazo ndikugawana nkhani yanu ya kampeniyi koma simungathe kulowa nawo gulu loyang'anira, chonde lemberani ku sarah.taylor@debra.org.uk. Tikufuna kumva kuchokera kwa inu ndipo tingakuuzeni njira zina zomwe mungatengere nawo mbali.

Chifukwa chake tiyenera kumva kuchokera kwa mamembala athu

Pakadali pano, tikukhulupirira kuti kampeniyi iyang'ana kwambiri pa vuto lomwe mamembala ena amakumana nalo pamene madokotala asintha mavalidwe apadera a EB omwe amapatsidwa ndi akatswiri a EB ndi njira zina zotsika mtengo komanso zodziwika bwino zomwe nthawi zambiri sizigwira ntchito bwino. Tikudziwa kuti izi zitha kubweretsa ululu, chiopsezo cha matenda komanso kuvutika maganizo kosafunikira.

Tikufunanso kumva za:

• The katundu wachuma mankhwala a EB (ku England kokha)
  (Odwala a EB pakadali pano sakuyenerera kulandira mankhwala aulere okha)
• aliyense zovuta zina mukukumana ndi mavuto
• mukamapeza zinthu zomwe mukufuna kuti muzitha kuyang'anira EB mosamala

Malingaliro anu atithandiza kupanga kampeni yokhala ndi zotsatira zenizeni ndikulimbikitsa kusintha kwakukulu.

Zimene tikudziwa kale

Zina mwa nkhanizi zidakambidwa mu kafukufuku wa EB Insights wa 2023

Kuchokera mu kafukufukuyu tikudziwa:

• 76% ya omwe adayankha amagwiritsa ntchito mabandeji, ndipo adapereka tsatanetsatane wa mitundu yomwe amadalira
• ambiri Akatswiri azaumoyo omwe si akatswiri a EB sakumvetsa:
  • chifukwa chake mavalidwe apadera ndi ofunikira kuchipatala
  • momwe amapezera ndalama zothandizira zaumoyo
• Mamembala adagawana zomwe adakumana nazo komanso zovuta zina mu gawo lomwe lafotokozedwa pa tsamba 68 la lipoti lonse 

Kutenga nawo mbali kwanu mu gulu loyang'anirali kudzatithandiza kusintha, kuzama ndi kulimbitsa umboniwu kuti tithe kupanga zifukwa zomveka bwino zosinthira.