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Kukhudzidwa kwa kafukufuku wa EB
Anthu omwe ali ndi chidziwitso cha EB ndiwofunika kwambiri kutithandiza kusankha zomwe timapereka. Kutengapo gawo kwawo kumalimbitsanso kafukufuku yemwe akuchitika. Izi zitha kukhala kupereka ndemanga pamafunso ofufuza kuti zitithandizire kusankha mapulojekiti omwe timapereka ndalama kapena kutenga nawo gawo pa kafukufuku wokha. Dinani pamapulojekiti osiyanasiyana omwe ali pansipa kuti muwone zomwe akunena komanso momwe mungatengere nawo gawo.
Simufunikanso kukhala ndi mbiri ya sayansi kuti mutenge nawo mbali. Tikufuna kuti anthu osiyanasiyana ochokera m'dziko lonselo omwe ali ndi zochitika zamitundu yosiyanasiyana ya EB atenge nawo mbali, kuti zisankho zathu ziyimire anthu ambiri amtundu wa EB momwe tingathere. Ma projekiti angaperekenso mwayi wokhala pamodzi ndi mamembala ena omwe ali ndi chidwi ndi kafukufuku wa EB.