Gawani nkhani yanu
Kugawana nkhani ndikofunikira pantchito yathu. Akhoza kudziwitsa anthu za EB ndi DEBRA ndi anthu onse ndikulimbikitsa zopereka zandalama zomwe timafunikira kuti tiyendetse ntchito zathu ndikuthandizira kafukufuku. Amathandiza ogwira ntchito zachipatala, ochita kafukufuku, ogwira ntchito za boma, ndi ndale kuti amvetse bwino EB ndipo motero amatithandiza kupanga kusintha kofunikira kwa omwe akukhala ndi EB. Ndipo nkhani zimatilola kugawana zomwe takumana nazo, kupambana, ndi zovuta mkati mwa gulu la EB, kuthandiza ena kukhala ndi moyo wabwino ndi EB.
Palibe njira yamphamvu yowonetsera momwe EB angakhale nayo kuposa kumva mwachindunji kuchokera kwa omwe ali ndi vutoli.
Nkhani ya membala aliyense imatithandiza kuyimira bwino gulu la EB. Popeza ma kampeni osiyanasiyana, omvera, ndi mwayi zimafuna mitundu yosiyanasiyana ya zokumana nazo, nthawi zina zimakhala zovuta kupeza nkhani yoyenera panthawi yoyenera. Pamene tikudziwa mamembala ambiri omwe ali otseguka kugawana ndipo zokumana nazozo zimakhala zosiyanasiyana, zimakhala zosavuta kuti tiwonetse kusiyanasiyana kwenikweni kwa dera lathu mu mauthenga athu, ma kampeni, ndi okamba nkhani.
Gulu lathu logulitsa likumanga laibulale ya mauthenga afupiafupi ochokera kwa mamembala, kuti makasitomala athe kumva mwachindunji kuchokera kwa anthu omwe ali ndi kapena omwe akhudzidwa ndi EB. Mauthenga awa amathandiza kuwonetsa momwe kugula ndi kupereka m'masitolo athu kumathandizira kwambiri.
Tikuyang'ana 8-10 mamembala kulemba a Mauthenga a mawu a masekondi 30–40 pafoni yawo. Kujambula kwanu kudzaseweredwa m'sitolo, zomwe zingathandize kudziwitsa anthu za nyimbo zanu ndikulumikiza makasitomala ku gulu la EB.
Kodi munganene chiyani?
Mungakonde kutero:
- Dzidziwitseni (ngati mukumva bwino)
- Zikomo makasitomala chifukwa cha chithandizo chawo
- Gawani pang'ono za zomwe mwakumana nazo mu EB
- Fotokozani momwe DEBRA yakuthandizirani inu kapena banja lanu
Palibe zolemba zokhazikika, chofunika kwambiri ndichakuti uthenga wanu ukhale wachilengedwe komanso wachinsinsi.
Momwe mungatengere mbali
- Lembani pafoni yanu (pogwiritsa ntchito mapulogalamu monga Voice Memos kapena Recorder)
- Pezani malo opanda phokoso lochepa kumbuyo
- Sungani uthenga wanu ku 30-40 mphindi
- Lankhulani momveka bwino komanso pang'onopang'ono
- Ngati mulibe foni yam'manja kapena mukufuna thandizo pang'ono, tidziwitseni, tili okondwa kukuthandizani.
Wachidwi?
Tumizani imelo kuti mutidziwitse membership@debra.org.uk
Timagawana nkhani m'njira zambiri. Kudzera pa social media, ma podcasts, nkhani zamakono, maimelo athu a kampeni kapena zikwangwani, mabulogu, mawu m'mabuku, kuyankhula pazochitika ndi kukumana ndi ena mwa omwe amatithandizira.
Koma tikudziwa kuti ichi ndi chosankha chaumwini ndipo chingakhale sitepe lovuta kuchita. Tikufuna kugwira nanu ntchito kuti mufotokozere nkhani yanu m'njira yomwe mumamasuka nayo.
Chonde yambitsani zokambiranazo polemba mawonekedwe.
Medics 4 Matenda osowa angotsegula pulogalamu yawo ya Ambassador kwa ofunsira atsopano! Uwu ndi mwayi wabwino kuti mugwiritse ntchito luso lanu loyankhulirana ndikugwira ntchito ndi gulu komanso gulu la matenda osowa kwambiri kuti mugawane ukadaulo wanu ndi zomwe mwakumana nazo.
Zonse zomwe mukufunikira kuti mugwiritse ntchito ndi Pano!
Tikuthandizana nawo RARE Youth Revolution, kukulitsa mawu a achinyamata omwe amakhala ndi EB.
RARE Youth Revolution idapangidwa kuti achinyamata omwe akukhala ndi mikhalidwe yosowa komanso yovuta kumva kuti ali ndi malo otetezeka kuti athe kugawana zomwe akumana nazo ndipo atha kutero m'njira zosiyanasiyana kuyambira polemba nkhani, ma podcasts, mabulogu, kutenga nawo gawo pazachitukuko. kampeni ndi mavidiyo olimbikitsa. Masomphenya awo amtsogolo ndi kuthana ndi mitu yomwe ana ndi achinyamata omwe akhudzidwa ndi zochitika zachilendo amasangalala nazo.
Tikuyang'ana mamembala pansi pa zaka za 25 ndikukhala ndi EB kutenga nawo gawo popanga kanema wa Teams komwe mungakambirane zomwe mudakumana nazo mukukhala ndi EB mumtundu wa Q&A ndi membala wina. Ngati mungafune kutenga nawo mbali pakuchita nawo gawo la achinyamata kuti muthandizire kufalitsa chidziwitso kapena mukufuna kumva zambiri, chonde fikirani member@debra.org.uk. Tidzakulumikizani ndi RARE Youth Revolution ndikukufananitsani ndi membala wina.
Mutha kuwona mavidiyo ena omwe adapanga pawo njira YouTube.
Thandizeni DEBRA odzipereka, antchito atsopano ndi othandizana nawo amamvetsetsa zambiri za EB.
Ogwira ntchito ku DEBRA ndi odzipereka atiuza kuti kukumana ndi munthu yemwe amakhala ndi EB, kumayambiriro kwa ntchito yawo ndi DEBRA, kunawathandiza kumvetsetsa kufunikira kwa udindo wawo komanso zomwe tikuyesera kukwaniritsa pano. Othandizana nawo atsopano omwe timagwira nawo ntchito amamvanso kuti ali ndi chidwi chothandizira kupeza ndalama ndi kuzindikira za EB akamvetsetsa zambiri za vutoli.
Pogawana zomwe munakumana nazo mu EB polankhula ndi magulu ochezeka a ogwira ntchito ku DEBRA ndi othandizira, mutha kulimbikitsa ndi kulimbikitsa ubale wathu.
Ngati ndinu membala ndipo mukufuna kudziwa zambiri zakulankhula mwachidule za EB yanu, chonde lembani zathu 'Gawani nkhani yanu' fomu, ndipo tidzalumikizana.