Khalani membala wa DEBRA
Kukhala membala ndi yaulere, yosavuta, ndipo imakupatsani mwayi wopeza chithandizo ndi maubwino athu osiyanasiyana.
Zimangotenga masekondi ochepa kuti lowani nawo gulu lathu!
Ndani angakhale membala?
Umembala wa DEBRA UK ndi wotseguka kwa aliyense amene ali ndi mtundu uliwonse wa epidermolysis bullosa (EB) . Muthanso kukhala membala ngati mukuthandiza munthu amene ali ndi EB monga:
- Kholo
- Wosamalira
- Wachibale
- Katswiri wazachipatala
- Wofufuza
Khalani membala wa DEBRA
Chifukwa chiyani kukhala membala
Community ndi mgwirizano. Pezani zochitika zapadera ndi mipata kugwirizana ndi ena okhala ndi EB.
Pokhala membala, mudzalimbikitsanso gulu lathu lomwe limalimbikitsa kafukufuku wabwino, chisamaliro chaumoyo cha akatswiri, ndi ufulu kwa aliyense amene akukhudzidwa ndi EB ku UK.
Khalani oyamba kudziwa. - Pezani nkhani zaposachedwa ndi zothandizira anthu omwe ali ndi EB ndikumva zamankhwala atsopano akapezeka.
Dziwani ufulu wanu. - Pezani malangizo a akatswiri kuti mudziwe ufulu wanu muzochitika zilizonse. Kuyambira pa chithandizo chapaulendo, kusintha komwe mumagwira ntchito ndi chilichonse chomwe chili pakati.
Tili ndi inu. - Gwiritsani ntchito yathu Zambiri za EB ndi zothandizira, ndi kukhala nazo chitsogozo cha timu yathu ndi khutu lomvera kukuthandizani pa gawo lililonse la moyo. Imbani EB Help Line pa 01344 577689, likupezeka Lolemba-Lachisanu, 8am-5:30pm.
Matchuthi apadera. - Sangalalani ndi kukhala kwathu mitundu yokongola ya nyumba za tchuthi, yochokera ku UK m'mapaki 5 * omwe adalandira mphotho, pamitengo yotsika mtengo.
Thandizo lazachuma. - Pezani thandizo thandizo zinthu zokuthandizani kukhala bwino ndi EB, malangizo azachuma, ndi ukatswiri wa gulu lathu kuti akuthandizeni kupeza phindu la boma lomwe mungayenerere.
Khalani ndi mawu. - Zosangalatsa mwayi wochita nawo m'ma projekiti mamembala, thandizani kukonza tsogolo la ntchito zathu za EB, ndi sankhani kafukufuku yemwe tidzapezekepo.
Ndi zambiri!
Lowani lero kuti mulandire baji yanu ya umembala, kalozera wa umembala, ndi zonse zomwe mukufunikira kuti muyambe kupindula ndi umembala wa DEBRA.
Khalani membala wa DEBRA
Chifukwa chiyani timafunikira mamembala atsopano ngati inu
DEBRA amakhalapo nthawi zonse ngati mukufuna ife, koma ifenso timakufunani. Tikakhala ndi mamembala ambiri, zimakhala zosavuta kuti:
Kudziwitsa anthu za EB. – Onetsani anthu angati omwe akukhala ndi EB, ndipo thandizani ena kumvetsetsa momwe imakhudzira komanso chifukwa chake chisamaliro ndi chithandizo chapadera ndizofunikira kwa aliyense amene wakhudzidwa.
Thandizani kafukufuku wathu. – Kukhala ndi mamembala ambiri kungatipatse zambiri zothandizira kafukufuku wathu wokhudza kugwiritsa ntchito mankhwala atsopano komanso kupeza njira zatsopano zochizira matenda a EB.
Patsani anthu a EB mawu amphamvu. - Mawu amphamvu ochokera kwa mamembala ambiri amatithandiza kupempha thandizo kwa boma, NHS, ndi mabungwe ena kuti akonze ntchito kwa anthu onse omwe ali ndi EB.
Dziwani zambiri za DEBRA
Ndife bungwe lothandiza odwala la anthu omwe akhudzidwa ndi EB, lomwe limadziwikanso kuti khungu la butterfly. Tilipo kuti tipereke chithandizo cha anthu ammudzi komanso chithandizo chomwe chimathandiza kukonza moyo wa munthu aliyense amene ali ndi kapena amene wakhudzidwa mwachindunji ndi mtundu uliwonse wa EB.
Kupatula thandizo lomwe timapereka, ndife amodzi mwa omwe amaika ndalama zambiri mu kafukufuku wa EB padziko lonse lapansi. Timathandizira kafukufuku woyambira womwe cholinga chake ndi kupeza chithandizo chothandiza cha mitundu yonse ya EB yobadwa nayo , kukonza moyo wabwino ndikuyembekeza kuti tipeze njira yopezera machiritso.
Kuti mudziwe zambiri za zonse zomwe timapereka kuti tikuthandizeni kugwiritsa ntchito bwino umembala wanu, mutha kuwona mtundu wa digito wa buku lathu lonse la umembala wa DEBRA.
Palibe chifukwa chosakhala membala! Sizikutengerani ndalama zambiri ndipo mutha kulembetsa kuti mulowe nawo mumphindi zochepa.
Simungatifune konse, koma tili pano chifukwa cha inu mukatero. Ndipo pokhala membala mungathe kuthandizira kuti anthu ena omwe akukhala nawo, kapena omwe akhudzidwa mwachindunji ndi mtundu uliwonse wa EB, apeze chithandizo chomwe akufunikira.