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Khalani membala wa DEBRA
Ndife bungwe lothandizira odwala kwa anthu omwe amakhala ndi mtundu uliwonse wa EB wobadwa nawo kapena wopeza ku UK.
Ndife odzipereka kuthandiza anthu omwe akukhala nawo kapena omwe akukhudzidwa mwachindunji ndi EB ndikupereka chithandizo chambiri komanso chithandizo chamagulu a EB kuti mukhale ndi moyo wabwino, kaya ndinu membala wa DEBRA kapena ayi.
Komabe, polowa nafe ngati membala mudzakhala ndi mwayi wopeza chithandizo cha EB komwe mumapeza chidziwitso ndi chithandizo pafoni, pafupifupi, komanso mwa-munthu, ndikupeza ubwino wina waukulu kuphatikizapo zochitika za DEBRA UK, komwe mungagwirizane nazo. mamembala ena agulu la EB, nthawi yopumira yatchuthi, kulengeza, komanso chidziwitso chazachuma, chithandizo, ndi thandizo.
Khalani membala wa DEBRA
“DEBRA imatanthauza zambiri kwa ife. Iwo atithandiza m’njira zambiri. Nthawi iliyonse ndikakhala ndi vuto, Woyang'anira wathu Wothandizira Pagulu amapereka upangiri waukatswiri, chithandizo chamalingaliro komanso zambiri zothandiza komanso zachuma zomwe sitikanatha kuzipeza. ”
Membala wa DEBRA
Umembala umakupatsaninso mawu komanso mwayi wopanga zomwe bungwe lachifundo limachita; ntchito zofufuza zomwe timayikamo, ndi ntchito zomwe timapereka kwa gulu lonse la EB.
Komanso kukhalapo chifukwa cha inu, timafunikira thandizo lanu. Pokhala membala mudzakhala mukupanga kusintha chifukwa mamembala omwe tili nawo ambiri, timakhala ndi deta zambiri, zomwe ndizofunikira kwambiri kuti tithandizire pulogalamu yathu ya kafukufuku ya EB, ndipo ndi mamembala ambiri timakhala ndi mawu okweza kuti tithandizire kukopa boma, NHS, ndi mabungwe ena kuti atithandizire kuti tithandizire kukonza mautumiki kuti apindule ndi gulu lonse la EB.
Kotero apo kwenikweni palibe chifukwa chilichonse chosakhala membala. Iwo Sichoncho kukuwonongerani chilichonse ndipo mutha gwiritsani ntchito kulowa nawo mphindi.
Mwina simusowa us, koma tili pano chifukwa cha inu mukatero, ndipo pokhala membala mutha kuthandiza kuti anthu ena omwe akukhala nawo, kapena okhudzidwa mwachindunji ndi mtundu uliwonse wa EB, pezani chithandizo chomwe akufunikira.