Khalani membala wa DEBRA
Kukhala membala ndi yaulere, yosavuta, ndipo imakupatsani mwayi wopeza chithandizo ndi maubwino athu osiyanasiyana.
Ndani angakhale membala?
Umembala wa DEBRA UK ndiwotsegukira aliyense amene ali ndi mtundu uliwonse wa epidermolysis bullosa (EB). Mutha kukhalanso membala ngati mukuthandizira wina yemwe ali ndi EB monga:
- Kholo
- Wosamalira
- Wachibale
- Katswiri wazachipatala
- Wofufuza
Khalani membala wa DEBRA
Chifukwa chiyani kukhala membala
Community ndi mgwirizano. Pezani zochitika zapadera ndi mipata kugwirizana ndi ena okhala ndi EB.
Pokhala membala, mudzalimbikitsanso gulu lathu lomwe limalimbikitsa kafukufuku wabwino, chisamaliro chaumoyo cha akatswiri, ndi ufulu kwa aliyense amene akukhudzidwa ndi EB ku UK.
Khalani oyamba kudziwa. - Pezani nkhani zaposachedwa ndi zothandizira anthu omwe ali ndi EB ndikumva zamankhwala atsopano akapezeka.
Dziwani ufulu wanu. - Pezani malangizo a akatswiri kuti mudziwe ufulu wanu muzochitika zilizonse. Kuyambira pa chithandizo chapaulendo, kusintha komwe mumagwira ntchito ndi chilichonse chomwe chili pakati.
Tili ndi inu. - Gwiritsani ntchito yathu Zambiri za EB ndi zothandizira, ndi kukhala nazo chitsogozo cha timu yathu ndi khutu lomvera kukuthandizani pa gawo lililonse la moyo. Imbani EB Help Line pa 01344 577689, likupezeka Lolemba-Lachisanu, 8am-5:30pm.
Matchuthi apadera. - Sangalalani ndi kukhala kwathu mitundu yokongola ya nyumba za tchuthi, yochokera ku UK m'mapaki 5 * omwe adalandira mphotho, pamitengo yotsika mtengo.
Thandizo lazachuma. - Pezani thandizo thandizo zinthu zokuthandizani kukhala bwino ndi EB, malangizo azachuma, ndi ukatswiri wa gulu lathu kuti akuthandizeni kupeza phindu la boma lomwe mungayenerere.
Khalani ndi mawu. - Zosangalatsa mwayi wochita nawo m'ma projekiti mamembala, thandizani kukonza tsogolo la ntchito zathu za EB, ndi sankhani kafukufuku yemwe tidzapezekepo.
Ndi zambiri!
Lowani lero kuti mulandire baji ya membala wanu, kalozera wa umembala, ndi zonse zomwe mukufunikira kuti muyambe kupindula ndi umembala wa DEBRA.
Khalani membala wa DEBRA
Chifukwa chiyani timafunikira mamembala atsopano ngati inu
DEBRA amakhalapo nthawi zonse ngati mukufuna ife, koma ifenso timakufunani. Tikakhala ndi mamembala ambiri, zimakhala zosavuta kuti:
Kwezani kuzindikira za EB. - Onetsani kuchuluka kwa anthu omwe ali ndi EB, ndikuthandizira ena kumvetsetsa momwe zimakhudzira komanso chifukwa chake chisamaliro chapadera ndi chithandizo ndizofunikira kwa aliyense amene wakhudzidwa.
Thandizani kafukufuku wathu. - Kukhala ndi mamembala ambiri kungatipatse zambiri kuti tithandizire kafukufuku wathu pakubwezeretsanso mankhwala ndikupeza mankhwala atsopano a EB.
Perekani gulu la EB mawu okweza. - Mawu amphamvu ochokera kwa mamembala ambiri amatithandiza kukopana ndi boma, NHS, ndi mabungwe ena kuti tipititse patsogolo ntchito za anthu onse omwe ali ndi EB.
Dziwani zambiri za DEBRA
Ndife bungwe lothandizira odwala kwa anthu omwe akhudzidwa ndi EB, omwe amadziwikanso kuti khungu la butterfly. Tilipo kuti tipereke chisamaliro cha anthu ammudzi ndi chithandizo zomwe zimathandiza kupititsa patsogolo moyo wabwino kwa munthu aliyense yemwe ali ndi kapena kukhudzidwa mwachindunji ndi mtundu uliwonse wa EB.
Kupatula chithandizo chomwe timapereka, ndifenso m'modzi mwa omwe amagulitsa ndalama zambiri mu kafukufuku wa EB padziko lonse lapansi. Timapereka ndalama zofufuzira zomwe cholinga chake ndi kupeza chithandizo chamankhwala chamitundu yonse ya EB yotengera, kupititsa patsogolo moyo wabwino ndikukonzekera njira yopezera machiritso.
Kuti mumve zambiri pazonse zomwe timapereka kukuthandizani kuti mupindule ndi umembala wanu, mutha kuwona mtundu wathu wa digito chiwongolero chonse cha umembala wa DEBRA.
Palibe chifukwa chokhalira membala! Sizikukuwonongerani kalikonse ndipo mutha gwiritsani ntchito kulowa nawo mphindi.
Simungatifune konse, koma tili pano chifukwa cha inu mukatero. Ndipo pokhala membala mungathe kuthandizira kuti anthu ena omwe akukhala nawo, kapena omwe akhudzidwa mwachindunji ndi mtundu uliwonse wa EB, apeze chithandizo chomwe akufunikira.