Pitani ku nkhani

Anthu athu

Sitingathe kuyimitsa ululu wa EB tokha. Ichi ndichifukwa chake tili othokoza kwambiri kudalira thandizo la mfumu yathu, pulezidenti wathu, wachiwiri kwa purezidenti, ndi akazembe omwe amatithandiza kudziwitsa anthu za EB, DEBRA UK, ndi ntchito yomwe timagwira.

Tikuthokozanso kwambiri chifukwa cha thandizo la mlangizi wathu wodziyimira pawokha, yemwe amathandizira pulogalamu yathu yofufuza, ndi Board of Trustees, omwe mwakufuna kwawo amapereka nthawi yawo kuyang'anira kasamalidwe ndi kayendetsedwe ka bungwe lothandizira kuwonetsetsa kuti likukhalabe lolunjika pa zosowa za bungwe lathu. mamembala ndi gulu lonse la EB.

HRH The Duchess of Edinburgh, akumwetulira pa kamera kumbuyo kwa ma cushion ofiira ndi apinki.

Mthandizi wathu

HRH The Duchess of Edinburgh ndiwokonda kuthandizira ntchito ya DEBRA ndikuthandizira gulu la EB.

Werengani zambiri

Simon Weston, akumwetulira ndikuyimirira ndi manja atadutsana.

Purezidenti wathu

Simon Weston CBE ikuthandiza DEBRA UK kudziwitsa anthu za EB komanso kuthandizira kusonkhanitsa ndalama kuti apereke chisamaliro ndi chithandizo kwa EB Community ndikuthandizira pulogalamu ya kafukufuku ya DEBRA.

Dziwani zambiri

Anthu asanu ndi mmodzi ovala zodziwikiratu, amaima mbali imodzi m'nyumba moyang'ana kumbuyo kwa tapestries zokongola komanso zokongoletsa.

Wachiwiri kwa purezidenti wathu

Dziwani zambiri za Wachiwiri kwa Purezidenti, momwe amathandizira DEBRA UK, ndi chifukwa chake ali ofunitsitsa kuthandiza gulu la EB.

Kumanani ndi Atsogoleri Athu

Kazembe wa DEBRA a Emma Dodds ali ndi cholankhulira pabwalo lamasewera pomwe owonera kumbuyo.

Akazembe athu

Akazembe athu amathandizira ndikuyimira zachifundo m'njira zambiri, kuphatikiza kuyankhula za EB ndi DEBRA pawailesi yakanema komanso pazochitika.

Kumanani ndi akazembe athu

Bungwe la matrasti la DEBRA UK.

Bungwe lathu la Trustee

Ma Trustees amachokera kumadera osiyanasiyana kuti abweretse malingaliro osiyanasiyana ndikukweza zisankho za Board.

Werengani zambiri

DEBRA UK's Senior Leadership Team

Gulu lathu la utsogoleri wamkulu

Gulu lathu la utsogoleri wamkulu likuyesetsa kukwaniritsa cholinga chathu chokweza moyo wa anthu omwe ali ndi EB komanso kufunafuna kwathu machiritso.

Kumanani ndi gululi

Khalani trasti

Thandizani kulangiza ndikuwongolera DEBRA ndikugwiritsa ntchito luso lanu kapena zomwe zidakuchitikirani kuti muthandizire kukwaniritsa zomwe tikufuna.

Dziwani zambiri

Chris Griffiths OBE wavala jekete lakuda ndi malaya oyera. Amayang'ana molunjika pa kamera ndi mawu osalowerera.

Mlangizi wathu wodziyimira pawokha - Chris Griffiths OBE

Pulofesa Griffiths amagawana nzeru zake zambiri komanso zomwe wakumana nazo pazakhungu kuti athandizire pulogalamu yofufuza ya DEBRA ndi cholinga chake.

Werengani zambiri