Kugwirizana

Ndife onyadira kugwira ntchito ndi chisamaliro chaumoyo, kafukufuku, ndi othandizana nawo ku UK komanso padziko lonse lapansi.

Pamodzi, tingathe kufikira omvera atsopano ndikudziwitsa anthu za EB. Titha kupindula ndi ukatswiri wawo ndikugwira ntchito limodzi kuti tipereke ntchito zapadera zomwe mamembala athu amafunikira kwambiri ndikuyendetsa pulogalamu yofufuza yapamwamba kwambiri yomwe ingabweretse chiyembekezo ndi zotsatira zabwino kwa anthu zikwizikwi omwe ali ndi mitundu yonse ya EB.

Timagwiranso ntchito ndi mabungwe ena kuti tipereke ntchito ndi zinthu za anthu ammudzi za EB zomwe mwina sakanatha kuzipeza.

Pamodzi, tikhoza kukwaniritsa masomphenya athu a dziko limene palibe amene akuvutika ndi ululu wa EB.