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EB Community Support Team
Gulu lathu lothandizira anthu ammudzi la EB limagwira ntchito ndi gulu la EB ndi odziwa zaumoyo kupereka chithandizo kwa mabanja ndi anthu omwe akhudzidwa ndi EB.
Tikufuna kupititsa patsogolo moyo wa anthu omwe ali ndi mitundu yonse ya EB. Timaperekanso zidziwitso, chitsogozo ndi kulengeza kwa gulu lonse la EB kuphatikiza mabanja ndi osamalira.
Mwa kujowina DEBRA UK ngati membala, womwe ndi waulere kwathunthu, mupeza mwayi wofikira pamitundu yonse ya Ntchito zothandizira anthu ammudzi za EB zomwe timapereka.
Khalani membala wa DEBRA UK
Momwe mungapezere thandizo kuchokera ku EB Community Support Team
Tili ndi Community Support Area Managers kudera lililonse la UK, ndifenso gulu ladziko lonse ndipo timathandizirana kuti tiphatikize ukatswiri ndikuwongolera ntchito moyenera kuti muwonetsetse kuti mukupeza chithandizo chomwe mukufuna.
Gululi lili pano kuti likuthandizireni Lolemba-Lachisanu 9am-5pm, pafoni, pafupifupi komanso payekha. Chonde imelo communitysupport@debra.org.uk kapena imbani 01344 577689 kapena 01344 771961 (sankhani njira 1).
Atsogoleri a Gulu Lothandizira Anthu a EB amayang'ana bokosi lothandizira anthu ammudzi pafupipafupi kuti apeze mauthenga ndipo amagawira zotumiza / pempho lililonse lomwe lilandilidwa kwa m'modzi mwa oyang'anira Thandizo amdera omwe alipo.
Kunja kwa maola awa mutha ndikusiya uthenga ndipo membala wa gulu abweranso kwa inu posachedwa (lomwe nthawi zambiri limakhala tsiku lotsatira).
Kumanani ndi gulu lothandizira la DEBRA EB Community
Ukadaulo wapadera wa Shamaila ndi thandizo la ndalama, ndalama zaumwini ndi zolipira zachindunji, kuunika kwa olera, ndi chithandizo choyamba chaumoyo wamisala.
Wambiri
"Ulendo wanga ku DEBRA UK udayamba mu Novembala 2019 ngati Woyang'anira Community Support Area, ndidasankhidwa kukhala Wachiwiri kwa Mtsogoleri wa Gulu ndipo mu Seputembala 2022, adandikweza kukhala manejala wa Community Support National.
Ntchito yanga ikukhudza, kugwira ntchito limodzi ndi Mtsogoleri wa Mamembala kuti athandize kupititsa patsogolo ntchito yothandizira anthu amtundu wa EB komanso kuthandizira Gulu Lothandizira Anthu kuti apereke chithandizo chapamwamba kwa anthu omwe miyoyo yawo ikukhudzidwa mwachindunji ndi EB.
Ndili ndi udindo wopanga dongosolo ndi njira zothandizira gulu kuti lizigwira ntchito limodzi ndi mamembala okhudzana ndi madera awo. Ndimagwiranso ntchito limodzi ndi akatswiri azachipatala a EB ku Birmingham, London ndi Scotland.
Ndine wotsogolera chitetezo ku bungwe loyang'anira ntchito za membala komanso wothandizira zaumoyo ku bungwe.
Ndakhala ndikugwira ntchito m'makhonsolo osiyanasiyana ndi mabungwe opereka chithandizo omwe akukhazikitsa ndikuyang'anira ntchito za anthu olumala ndikuwaphatikiza muzochita zodziwika bwino.
Ndikakhala kuti sindikugwira ntchito, ndimakonda kuyenda, ndimakonda kukhala olimba komanso kusangalala kupita ku masewera olimbitsa thupi komanso kuthamanga. Ndilinso ndi ana aang’ono aŵiri amene amandipangitsa kukhala wokangalika m’maganizo ndi m’thupi!”
Momwe mungalumikizire Shamaila:
Phone: 07747 474454 kapena 01344 577689 / 01344 771961 (njira 1)
Email: shamaila.zaidi@debra.org.uk
Wambiri
“Panthawi yonse yantchito yanga ndakhala ndikugwira ntchito m'nyumba za ana ndipo ndinali manejala olembetsedwa ku Ofsted kwa zaka zambiri ndikusamalira ndi kusamalira ana ndi achichepere omwe amafunikira kukhala kutali ndi mabanja awo. Nthawi zonse ndakhala ndikutsatira ndondomeko yaumwini ndi yaukatswiri yopititsa patsogolo chisamaliro. Ndagwira ntchito ndikuyang'anira matimu osiyanasiyana omwe ali ofanana komanso ophatikizidwa pachimake chazochita zanga ndipo ndazolowera kukhala m'magulu amagulu osiyanasiyana omwe amagwira ntchito kuti apeze zotsatira zabwino.
Ndayang'anira nyumba zogona za achinyamata omwe ali ndi vuto lamisala komanso zovuta zamakhalidwe ndipo ndathandiziranso anthu omwe ali ndi zosowa zovuta zaumoyo, matenda angapo, komanso anthu olumala komanso kuyenda. Ndapatsa anthu mphamvu kuti athe kupeza ndi kulimbikitsa maphunziro ndi ntchito ndikulimbikitsa ufulu wawo wodziyimira pawokha komanso chitukuko chaumwini kuti akhale omasuka ndi kuphatikizidwa ndi anthu ambiri. Ndili ndi chidwi kwambiri ndi upangiri wa ogwira ntchito, maphunziro ndi chitukuko.
Ndagwira ntchito ku DEBRA UK kuyambira 2022 ndipo pa udindo wanga, ndimayesetsa kudziwitsa anthu za EB komanso kulikonse komwe kuli kotheka kusintha moyo wa mamembala athu. Ndikupanga gawo langa lapadera mu Gulu Lothandizira Anthu ndikuyang'ana tsankho pantchito kuti ndithe kuthandiza mamembala kupeza ndi kusunga ntchito zoyenera komanso kuchitapo kanthu pagulu. Ndinenso wolumikizana ndi akatswiri a EB achipatala ku Great Ormond Street Hospital ndi Guys ndi St.Thomas' Hospital.
Ndikakhala kuti sindikugwira ntchito, ndimakhala ndi zidzukulu zowakonda ndi kuwathandiza. Ndimakonda masewera a rugby, sci-fi, ndipo ndimachita nawo ndale zakumaloko”.
Momwe mungalumikizire David:
Phone: 07442 546912 kapena 01344 577689 / 01344 771961 (njira 1)
Email: david.williams@debra.org.uk
Wambiri
“Ndinalowa ku DEBRA UK mu Epulo 2023. Ndili ndi mbiri yosiyanasiyana pazaumoyo ndi chisamaliro cha anthu. Ndisanalowe nawo ku DEBRA UK, ndidagwira ntchito yofufuza zachipatala, ndikuchita zoyeserera zachipatala kunyumba. Izi zisanachitike, ndimayang'anira bungwe losamalira anthu kunyumba - kuthandiza anthu ammudzi. Ndagwiranso ntchito ku mabungwe angapo a NHS ndikuphunzira za chitukuko cha anthu ndi anthu ku yunivesite.
Ndine wokonda kupanga kusiyana ndipo ndine wokondwa kuchita izi ku DEBRA UK.
Komanso kukhala Mtsogoleri wa Gulu Lothandizira Anthu ku DEBRA UK Ndinenso mgwirizano ndi magulu a zaumoyo a EB ku Birmingham Women and Children's Hospital ndi Solihull Hospital.
Pamene sindikugwira ntchito, ndili ndi mwana wamwamuna wazaka 8 komanso Labradoodle, omwe amakonda kundipangitsa kukhala wotanganidwa! Tikakhala kuti sitiyenda maulendo ataliatali kapena kusewera/kuonera mpira, nthawi zambiri ndimaona kuti ndimakonda holide yanga yotsatira!”
Momwe mungalumikizire Rachel:
Phone: 07442 559445 kapena 01344 577689 / 01344 771961 (njira 1)
Email: rachael.meeks@debra.org.uk
Chigawo cha Amelia cha ukadaulo wapadera ndi chithandizo chamitima.
Wambiri
"Ndagwira ntchito ku DEBRA UK kuyambira 2019, mbiri yanga ikuphatikiza kusamalira ana komanso maudindo osiyanasiyana othandizira mabanja m'mabungwe achifundo komanso aboma.
Ndagwiritsa ntchito luso langa pantchito yofedwa kuti ndithandizire kulemba zolemba zamaliro patsamba lathu. Ndimasangalala ndi udindo wanga pano ku DEBRA UK, ndikugwira ntchito ndi mamembala ndikugawana zomwe tili nazo pagulu lonse kuonetsetsa kuti mamembala athu akuthandizidwa momwe tingathere. Ndine wokonda kwambiri kudziwitsa anthu za EB.
Zomwe ndimaphunzira tsiku lililonse ndi mphamvu zomwe mamembala athu ali nazo - momwe amagonjetsera zovuta zomwe amakumana nazo pamoyo watsiku ndi tsiku. Ndimaona kuti ndi mwayi waukulu kuloledwa kuchitira umboni zimenezi.
Ndikakhala kuti sindikugwira ntchito, ndimakonda kucheza ndi anzanga ndi abale, kuyendera malo owonetserako zisudzo ndi nyimbo, komanso kuthera m'munda mwanga”.
Momwe mungalumikizire Amelia:
Phone: 07920 231271 kapena 01344 771961 (njira 1)
Email: amelia.goddard@debra.org.uk
Dera la ukadaulo wapadera wa Holly ndi maphunziro komanso chithandizo chamalingaliro.
Wambiri
"Ndidalowa nawo DEBRA UK mu June 2022, izi zisanachitike ndidagwira ntchito ndi ana m'maudindo osiyanasiyana, mkati mwa NHS, zachifundo komanso zabizinesi. Posachedwapa ndakhala ndikugwira ntchito ngati nanny koma ndidasowa kugwira ntchito mothandizirana ndi mabanja omwe gawoli limapereka.
Chidziwitso changa chakumbuyo chimandipangitsa kumvetsetsa bwino zakuthandizira ana ndi mabanja mkati mwa maphunziro, komanso ndimakonda kupatsa anthu malo komanso khutu lomvetsera lomwe amafunikira kuti atsitse moyo ukavuta. Ndapanga maphunziro angapo a luso lomvetsera ndipo ndinawagwiritsa ntchito m'maudindo anga am'mbuyomu ndipo ndikuyembekeza kutha kugwiritsanso ntchito malusowa.
Ndinali ndi chidziwitso cha EB ndisanayambe ntchitoyi chifukwa cha wachibale yemwe ali ndi EB, koma chidziwitso changa chokhudza EB chikupitirira kukula mu nthawi yanga ndi DEBRA UK. Ndikuyembekezera kupitiriza ulendo wanga wamaphunziro ndikuthandizira anthu omwe ndimagwira nawo ntchito momwe ndingathere.
Ndikapanda kugwira ntchito, ndimakonda kutuluka ndi kuyenda ndi galu wanga, kupita kumalo ochitira masewera olimbitsa thupi kapena kuonera TV yatsopano!”
Momwe mungalumikizire Holly:
Phone: 07884 742439 kapena 01344 771961 (njira 1)
Email: holly.roberts@debra.org.uk
Dera la Rowena la ukadaulo wapadera ndi nyumba.
Wambiri
"Ndinayamba kugwira ntchito ku DEBRA UK mu June 2018, izi zisanachitike ndinali ndi zaka 25 ntchito yosamalira anthu komwe ndimagwira ntchito m'magawo osiyanasiyana kuphatikizapo kugwira ntchito ndi ana, akuluakulu, anthu omwe akusowa pokhala, nyumba, nkhanza zapakhomo, osatetezeka. akazi ndi mabanja.
Zomwe ndakumana nazo komanso chidziwitso changa zimandithandiza kuthandiza mamembala athu m'njira zambiri, kuphatikiza momwe angapezere chithandizo choyenera mkati mwa gawo la nyumba.
Ndakhala ndi chisangalalo chothandizira mamembala athu ndi magulu azachipatala panthawi yomwe ndinali ndi DEBRA UK ndipo ndimakonda kwambiri ntchito zomwe timapereka.
Ndikapanda kugwira ntchito, ndimakhala munthu wochezeka kwambiri ndipo ndimakonda kucheza ndi banja langa komanso anzanga, ndimakonda kukhala olimba komanso kupita ku masewera olimbitsa thupi, kuthamanga ndi kuyenda. Ndimadziwika ndi zovuta zatsopano ndipo mu 2018 ndidayenda mtunda wa 150km kudutsa chipululu cha Sahara kuthandiza DEBRA UK. "
Momwe mungalumikizire Rowena:
Phone: 07747 474051 kapena 01344 771961 (njira 1)
Email: rowena.hamilton@debra.org.uk
Ukatswiri wa Susan ndi nyumba ndi maubwino.
Wambiri
"Ndinayamba kugwira ntchito ndi DEBRA UK mu July 2022. Ndinakhala zaka 17 ndikugwira ntchito yosamalira anthu, makamaka ndi azaka zapakati pa 16-25 kuchoka ku chisamaliro cha boma kupita ku ufulu wodzilamulira. Ndinali mlangizi wodziwa za nyumba za gulu lazaka izi kotero kuti ndikudziwa zambiri za malamulo a nyumba, zosowa zovuta, chithandizo chamankhwala, kusowa pokhala, kuthandizira anthu, komanso kuthandiza anthu kupeza phindu kwa nthawi yoyamba.
Paudindo wanga ndikufuna kuthandizira mamembala athu ndi chithandizo chanyumba komanso mwayi wopeza zopindulitsa ndipo kuyambira pomwe ndalowa nawo DEBRA UK ndimakonda kukumana ndi mamembala, ndi anzanga ochokera kumagulu azachipatala a EB.
Ndikapanda kugwira ntchito, ndimakonda kumvera nyimbo zamoyo, izi ndi zomwe ndimakonda kotero mudzandipeza ndikugwedezeka ku konsati kapena chikondwerero chilichonse ndikapeza mwayi. Ndimakhala m'makalasi olimbitsa thupi makamaka kuti ndizitha kuyenda, ndipo zimandithandiza kukhala ndi thanzi. Ana anga akula tsopano, koma timathera nthaŵi yochuluka pamodzi ndipo zimenezi zimandisangalatsa kwambiri. Ndimasangalalanso ndi nyanja kapena kukhala pafupi ndi madzi ngakhale ndikuyenda basi”.
Momwe mungalumikizire Susan:
Phone: 07570 313477 kapena 01344 771961 (njira 1)
Email: susan.muller@debra.org.uk
Wambiri
"Ndidayamba ku DEBRA UK mu Julayi 2021 mkati mwa gulu la Fundraising and Events ngati Supporter Services Officer, komwe ndidathandizira kuyendetsa kwa masiku a gofu ndi zochitika zazikulu. Tsopano ndasuntha kosangalatsa ku Gulu Lothandizira Anthu monga Woyang'anira Malo Othandizira Anthu. Mbiri yanga ikuphatikizapo digiri ya psychology ndipo mbiri yanga ya ntchito idandiwona ndikugwira ntchito m'nyumba za okalamba komanso osamalira anthu odwala matenda amisala monga wothandizira osamalira komanso wogwirizanitsa zochitika. Ndimasangalala ndi maudindo omwe anthu amakhala nawo ndipo ndili ndi chidwi chothandizira gulu la EB ndikudziwitsa anthu za vutoli.
Ndimayesetsa kugwiritsa ntchito luso langa kupatsa mphamvu ndikuthandizira mamembala athu pazovuta zilizonse zomwe angakumane nazo, komanso kukhala khutu lomvetsera ngati kuli kofunikira. Ndikuyembekeza kukhazikitsa ubale wabwino ndi gulu la EB ndikupereka chithandizo chabwino kwambiri chothandizira anthu ammudzi.
Ndikapanda kugwira ntchito, ndimakonda kwambiri nyama ndipo ndimakonda kuyenda ndi agalu anga, kukwera ndi kusamalira akavalo anga awiri, ndikusamalira ziweto zachilendo! Ndili ndi dzino lokoma komanso ndimakonda kupanga zowotcha za abwenzi ndi abale ”.
Momwe mungalumikizire Jade:
Phone: 07919 000330 kapena 01344 771961 (njira 1)
Email: jade.adams@debra.org.uk
Wambiri
"Ndinalowa ku DEBRA UK mu April 2024. Ndimachokera ku chikhalidwe chogwira ntchito ndi akuluakulu olumala kwa zaka 10, poyamba monga wothandizira ndipo kenako ndi gulu la akatswiri ogwira ntchito zamagulu. Ndikufuna kubweretsa chidziwitso changa chogwira ntchito ndi makasitomala omwe ali ndi zosowa zosiyanasiyana zothandizira komanso kumvetsetsa machitidwe a chikhalidwe cha anthu ndi zaumoyo kwa mamembala a DEBRA UK ku Scotland.
Ndine wokonda kupereka chithandizo chothandiza komanso chamalingaliro, komanso kugwira ntchito mogwirizana ndi akatswiri ena kuti tikwaniritse zosowa za mamembala athu mwanjira iliyonse yomwe tingathe.
Pamene sindikugwira ntchito, ndangogula nyumba yanga yoyamba yapamwamba kotero ndikuwononga nthawi yambiri ndikukonza pulojekiti yotsatira paulendo. Ndilinso ndi greyhound wazaka 6 yemwe ndidatengera chaka chapitacho yemwe amandipangitsa kukhala wotanganidwa ndi zoseweretsa zake - ndimakonda kwambiri kupita naye kumalo owoneka bwino ndi anzanga ndi abale kumapeto kwa sabata ".
Momwe mungalumikizire Erin:
Phone: 07586 716976 kapena 01344 771961 (njira 1)
Email: erin.reilly@debra.org.uk
Wambiri
"Ndinayamba ku DEBRA mu July 2024. Ndinakhala zaka pafupifupi 18 (zambiri za ntchito yanga) ndikuphunzitsa ana. Komabe, udindo wanga waposachedwa ndisanalowe DEBRA, ndinali kugwira ntchito yothandizira ana ndi mabanja ndi SEND.
Ndikufuna kubweretsa chidziwitso changa pa SEND ndi zomwe ndakumana nazo komanso chidwi changa kwa mamembala athu. Ndikufuna kuthandiza mabanja kudzera m'maulendo awoawo ndikukulimbikitsani inu ndi zosowa zanu.
Ndikakhala kuti sindikugwira ntchito, ndimakonda kucheza ndi ana anga awiri, kuwerenga mabuku ndi kupita kutchuthi komwe kuli dzuwa ndi kuonera zojambula.”
Momwe mungalumikizire Gemma:
Phone: 07825 072211 kapena 01344 771961 (njira 1)
Email: gemma.turner@debra.org.uk