Mgwirizano wa DEBRA kwa mamembala
Ku DEBRA, timagwira ntchito ndi mabungwe ena kuti titha kupereka chithandizo ndi zinthu zatsopano kwa gulu la EB zomwe mwina sangakhale nazo.
M'munsimu ndikuwona abwenzi omwe tikugwira nawo ntchito pano, komanso momwe akutithandizira kuthandiza anthu omwe ali ndi mitundu yonse ya EB.
Bullen Healthcare
Tikudziwa kuti kusamalira nthawi zosiyanasiyana zokumana ndi dokotala, mankhwala olembedwa ndi dokotala, ndi nkhani zina zonse zokhudzana ndi thanzi kungafune nthawi yambiri ndi mphamvu. Kuti zinthu zikhale zosavuta komanso kuchepetsa nkhawa, mamembala athu ambiri amagwiritsa ntchito njira yotumizira mankhwala kunyumba ya Bullen Healthcare .
Bullen amakhazikika pazosowa zosamalira zilonda ndi zolemba za anthu omwe ali ndi EB. Amagwiranso ntchito ndi anamwino apadera osamalira mabala ndipo apanga maubwenzi nawo pazaka zambiri kuti aphunzire kuchokera ku zomwe adakumana nazo komanso ukatswiri wawo m'derali.
Izi zimathandiza Bullen kuti atenge nawo mbali pazochitika zaposachedwa kwambiri za chisamaliro cha mabala ndikuwongolera mosalekeza zopereka zawo kuti zitsimikizire kuti akupereka chisamaliro chabwino kwambiri.
Makasitomala aliyense yemwe ali ndi Bullen ali ndi mlangizi wawo wosamalira yekha yemwe angagwire nawo ntchito kwanthawi yayitali, kumvetsetsa zosowa zawo ndikuyitanidwa kuti awathandize pakagwa mwadzidzidzi.
Monga membala wa DEBRA ndi Bullen, mupezanso maubwino ena ndi chithandizo chawo chamankhwala cha EB, monga:
- Kufufuza pamwezi ndi thanzi labwino.
- Kudula kwaulele, kutumiza, kuyitanitsanso ndikusonkhanitsa.
- Kusankhidwa kwakukulu kwazinthu zowonjezera, kuchokera ku zotsukira manja kupita ku zoteteza matiresi.
- Ngati mukufuna kudziwa zambiri kapena kulembetsa ku Bullen Healthcare's prescription service, mutha kupita patsamba lawo.
Ngati mukufuna kudziwa zambiri kapena kulembetsa ku bungwe la Bullen Healthcare, mutha kupita patsamba lawo.
Whiz Kidz
Tagwirizana ndi Whiz Kidz kuti tithandizire kupatsa ana ambiri omwe ali ndi EB njinga za olumala zomwe amafunikira kuti apeze ufulu wambiri komanso kudziyimira pawokha.
Mabajeti otambasulidwa a NHS ndi mtengo wa zida za olumala kukwera ndi 10-13% chaka chilichonse zikutanthauza kuti mabanja ambiri sangakwanitse kugula zikuku zawo.
Pogwira ntchito ndi Whiz Kidz, titha kupereka ndalama zothandizira anthu olumala kwa mamembala ngati Everly, yemwe njinga yake yatsopano ya olumala yasintha kwambiri moyo wake.
Mukhoza kudziwa zambiri zokhudza Whizz Kidz poyendera tsamba lawo lawebusayiti.
Ba Mwana
Tikusangalala kugwirizana ndi Baa Baby, kampani yopereka mphoto yogulitsa zinthu zachilengedwe zopangidwa ndi zikopa za ana. Ndi zaka zoposa 16 zakuchitikira, Baa Baby yadzipereka ku zinthu zabwino, chitonthozo, komanso chitetezo - ndipo zinthu zawo zonse ndi zovomerezeka za OEKO-TEX komanso zotetezeka kwa makanda.
Pa galimoto iliyonse ya Baa Baby yogulitsidwa, Baa Baby ipereka £1 ku DEBRA.
N’chifukwa Chiyani Chikopa cha Nkhosa Chimafunika? Chitonthozo Chachilengedwe Chokhala ndi Mapindu Enieni
• Yoletsa mabakiteriya mwachilengedwe komanso yoletsa dothi
Ulusi wa ubweya uli ndi tizilombo toyambitsa matenda tomwe timakhala ndi mphamvu zachilengedwe zoletsa mabakiteriya komanso dothi, zomwe zimapangitsa kuti chikopa cha nkhosa chikhale chosavuta kusunga choyera kuposa momwe ambiri amayembekezera.
• Lili ndi lanolin — yofewa komanso yopatsa chinyezi
Lanolin, yomwe imapezeka mwachilengedwe mu chikopa cha nkhosa, imagwira ntchito ngati mafuta ofewa komanso otonthoza khungu lofewa, ndipo imathandiza kuteteza ku chinyezi, fungo loipa, ndi kutaya madzi tsiku ndi tsiku.
• Yopumira bwino komanso yowongolera kutentha
Ulusi wachilengedwe umathandiza kuti ana azizizira kutentha komanso kutentha kukakhala kozizira.
• Imathandiza khungu lofewa
Chikopa cha nkhosa chili ndi keratin, puloteni yomwe imayamwa chinyezi popanda kumva kunyowa, zomwe zimathandiza kuti khungu likhale louma, loyera, komanso lomasuka.
• Mwachibadwa zimathandiza komanso zimatonthoza
Mulu wokhuthala komanso wooneka ngati masika umagawa kulemera mofanana, zomwe zimapangitsa kuti malo ake akhale ofewa komanso otonthoza.
Chopereka chochotsera : Baa Baby akusangalala kupatsa mamembala onse a DEBRA kuchotsera kwa 25% pa oda yawo ya zinthu zilizonse kuchokera patsamba la Baa Baby. Choperekachi chikupezeka tsopano, chonde tumizani imelo ku membership@debra.org.uk kuti mupeze khodi yanu yochotsera.
Phukusi la mphatso la makanda obadwa kumene laulere – Baa baby akusangalala kupereka phukusi la mphatso la makanda obadwa kumene laulere kwa makanda onse obadwa ndi EB.
Mtolo uwu uli ndi:
- Chovala chachikopa cha nkhosa chopangidwa ndi chikopa cha nkhosa kuti chikhale chofewa komanso chokongola m'galimoto ya ana
- Kapeti ya chikopa cha nkhosa yosungira ana, nthawi ya mimba, nthawi yosewera, komanso nthawi yopuma
- Chotonthoza cha chimbalangondo cha FLATOUT chofewa - chotonthoza chofewa chabwino kwambiri chokumbatirana
- Chisamaliro chosungira chikopa cha nkhosa chofewa komanso chofewa kwa zaka zambiri zikubwerazi
Kuti mupeze phukusi lanu laulere la mphatso ya makanda obadwa kumene, chonde tumizani imelo ku membership@debra.org.uk kapena lankhulani ndi Woyang'anira Thandizo la Anthu Amdera lanu kuti mupeze khodi yochotsera.
Kodi mukudziwa kampani yomwe ingagwirizane ndi DEBRA?
Ngati mukuganiza kuti kampani yanu ingagwirizane ndi DEBRA kuti ipereke chinthu kapena ntchito yomwe ingathandize anthu ammudzi wa EB, chonde funsani Ann Avarne , Woyang'anira Mgwirizano Wathu Wamakampani.