Zothandizira azachipatala
Tsambali lili ndi zothandizira akatswiri azachipatala omwe akuchiza ndikuwongolera chisamaliro cha odwala EB. Chonde pitani kwathu EB thandizo ndi zothandizira zokhuza anthu omwe si achipatala.
mabuku
Kuphatikiza pa Malingaliro a kampani DEBRA International Malangizo Othandizira Odwala, pali zowonjezera zowonjezera zomwe zimapezeka kwa akatswiri oyang'anira chisamaliro cha odwala EB.
- Njira zopangira opaleshoni
- Malangizo Ophatikizana Pamanja ndi Zochita Zolimbitsa Thupi za Ana omwe ali ndi epidermolysis bullosa
- © Birmingham Children's Hospital NHS Trust, ikupezeka pano ndi chilolezo chachifundo cha gulu la Birmingham Children's Hospital Occupational Therapy
- Birmingham Women's & Children's NHS Foundation Trust yapanganso zosiyanasiyana timapepala ndi mavidiyo ophunzitsa kwa akatswiri.
Momwe mungatumizire gulu la EB Community Support Team
athu EB Community Support Team amagwira ntchito limodzi ndi akatswiri azachipatala komanso azaumoyo. Kuti mudziwe zambiri za kalozerayu, chonde werengani mfundo zotumizira anthu.
chonde onani ndondomeko zathu kuti mumve zambiri.
EB-CLINET
EB-CLINET ndi njira yopititsira patsogolo chithandizo chamankhwala kwa anthu omwe ali ndi EB mwa kulimbikitsa mgwirizano pakati pa akatswiri azaumoyo omwe amagwira ntchito ndi EB.
Thanzi la Maganizo ndi Matenda Osowa
Medics 4 Matenda Osowa ayambitsa maphunziro atsopano a pa intaneti, 'Mental Health and Rare Disease', omwe ali ndi maphunziro 8 omwe amakambirana.
Chodzikanira: DEBRA siyingayimbidwe mlandu pazomwe zili patsamba lakunja.
Tsamba losindikizidwa: Okutobala 2024
Tsiku lomaliza lomaliza: Marichi 2025
Tsiku lobwereza lotsatira: Marichi 2026