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Zochitika za membala wa DEBRA UK

Wogwira ntchito akulemba chikwangwani chakuti "Tili pano kuti tikuthandizeni" pa mwambo wa mamembala a DEBRA UK, ana akukwera bwato, ndipo wokamba nkhani akupereka uthenga kwa omvera pamsonkhano wa DEBRA.

Timadziwa kuti ndi kofunika bwanji kuti mamembala a gulu la EB athe kulumikizana wina ndi mzake, kugawana zochitika ndi malangizo, kupanga mabwenzi, ndi kusangalala, zonse popanda kufotokoza zomwe EB ndi.

Ichi ndichifukwa chake tapanga pulogalamu ya zochitika zapadziko lonse, madera komanso pa intaneti kuti gulu la EB lizitha kulumikizana kwanuko ndikupanga kulumikizana kofunikira ndi mamembala amadera ena adziko.

Zochitika zathu zimapatsanso mwayi mamembala kuti alumikizane ndi DEBRA EB Community Support Team komanso kumva kuchokera kwa akatswiri pankhani ya chisamaliro chaumoyo cha EB.

Kupatula zochitika zathu makamaka za mamembala, nthawi zina timalandiranso matikiti ochepa aulere kuti mamembala akapezeke pazochitika zazikulu zopezera ndalama za DEBRA.

Onani mndandanda wathu wonse wa zochitika za mamembala

Pezani chochitika

Nthawi zonse timakonza zochitika zathu kutengera zomwe mamembala athu akufuna komanso zomwe akufunikira. Chifukwa chake, ngati pali china chake chomwe mukufuna kuwona kapena chochepa, kapena ngati muli ndi lingaliro la chochitika chatsopano, tikufuna kumva malingaliro anu podzaza fomuyi.

Zochitika zapa-munthu za mamembala a DEBRA UK

Mamembala athu amakhala konsekonse ku UK. Monga ambiri simutero khalani pafupi wina ndi mzake komanso zochitika zing'onozing'ono zam'deralo sizili nthawi zonse zothandiza, timakhala ndi zochitika zosiyanasiyana zachigawo kuti tigwirizane ndi mamembala onse chaka, kuwonjezera pa zathu Sabata ya Mamembala chochitika cha dziko lonse.
Zochitika zikuphatikiza sabata yodziyimira pawokha makamaka kwa mamembala azaka 18+ ku London, ndi zomwe zidakhazikitsidwa posachedwa. Zolumikizana Zam'deralo.
Tilinso ndi cholinga cholumikizana ndi mamembala athu pazochitika zina za chipani chachitatu ndi ziwonetsero monga Naidex, chochitika chotsogola ku UK chopatsa mphamvu ndikuthandizira olumala.
Chithunzi cha Norwich chomwe chili mumlengalenga chili ndi Nyumba Yachifumu ya Norwich kutsogolo, nyumba za mzinda, ndi chipilala cha tchalitchi pansi pa thambo loyera—chikuwonetsa bata lomwe likuwonetsedwa ndi Members Connect: Norwich.

Lumikizanani ndi Mamembala: Norwich

Tidzakumane nafe Lamlungu pa 9 Ogasiti kuyambira 10:30am mpaka 2:00pm ku Norwich Castle pa mwambo wosangalatsa wa mamembala womwe udzachitikire Rowena ndi Abby. Tidzakumane nafe kuti tidzakumane ndi mamembala ena, tiphunzire zambiri za mautumiki athu, titenge nawo mbali pazochitika zosiyanasiyana, ndikusangalala ndi ulendo waulere ku Norwich Castle pambuyo pake.
Dziwani zambiri
Azimayi awiri akhala patebulo lakudyera, akumwetulira komanso akukambirana za zakumwa pa imodzi mwazochitika za Local Connect za DEBRA.

Zolumikizana Zam'deralo

Zochitika za Local Connect ndizosakhazikika, zotsikira mwa munthu zomwe zimayendetsedwa ndi DEBRA's EB Community Support Team, zokonzedwa kuti zibweretse anthu okhala ndi EB pamodzi. Izi zikuchitika ku UK konse.
Dziwani zambiri
Wometa tsitsi ku Windermere salon akugwiritsa ntchito mankhwala a Style ndi Smile pa tsitsi la mkazi wokhala pansi kutsogolo kwa galasi lowala—mapulogalamu tsopano atsegulidwa!.

Kalembedwe ndi Kumwetulira

Tigwirizaneni nafe Lamlungu pa 27 Seputembala kuti mudzalandire Style & Smile, pulogalamu yapadera ya DEBRA yothandiza anthu okhala ndi EB komanso abale awo kapena osamalira. Mogwirizana ndi akatswiri okonza tsitsi, akatswiri okonza tsitsi, akatswiri odzola zodzoladzola ndi wojambula zithunzi, mudzasangalala ndi gawo lokonzekera tsitsi lanu komanso kujambula zithunzi zaukadaulo zomwe zapangidwa kuti zikuthandizeni kukhala odzidalira komanso olemekezeka.
Dziwani zambiri

Zochitika pa intaneti za mamembala a DEBRA UK

Zochitika izi Perekani mwayi ku lmverani ena, ku gawo malangizo ndi zochitika, ndi ku kambiranani za malingaliro omwe ali ndi mitu yambiri Zogwirizana ndi EB. Chofunika kwambiri, iwonso Perekani mwayi ku kudziwa ena mamembala a EB ammudzi m'malo omasuka, osakhazikika.
Mayi wovala mahedifoni amakhala pa desiki, akumwetulira ndikuyang'ana pa laputopu yake pa intaneti.

Ma webinars a Zaumoyo ndi Zaumoyo

Ma webinars athu a Zaumoyo ndi Zaumoyo ndizochitika zaulere pa intaneti. Amapereka mwayi kwa mamembala onse kulumikizana ndi ena ndikuphunzira za mitu yomwe ili yofunika ku gulu la EB.
Dziwani zambiri
Dr Carina Graham wovala labu ndi magolovesi amakhala pa chopondapo mu labotale, akumwetulira. Yoyikidwa kutsogolo kwa laminar flow hood yodzazidwa ndi zida zosiyanasiyana za labu ndi zida.

Research and Health webinars

Magawo awa, ochitidwa ndi DEBRA UK Director of Researcher Dr Sagair Hussain, ndi mwayi wabwino wophunzirira mitu yosiyanasiyana yokhudzana ndi EB, ndikuyankha mafunso anu ndi akatswiri.
Dziwani zambiri
Bolodi lolembedwapo mawu akuti "Dziwani Malamulo a Malangizo a Zochitika Pa intaneti!

Malangizo a zochitika pa intaneti

Zochitika zathu pa intaneti zimayendetsedwa kuti zikuthandizeni kulumikizana ndi mamembala ena. Kuti gawo lililonse likhale lolandirika, lothandizira komanso lotetezeka, tikukupemphani kuti mutsatire malangizo athu.
Dziwani zambiri
Chizindikiro cha DEBRA UK. Chizindikirocho chimakhala ndi zithunzi za gulugufe wabuluu komanso dzina la bungwe. Pansi pake, mawu akuti "The Butterfly Skin Charity.
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