Ndife okondwa kulengeza kuti 'Mpira wa Gulugufe wa Albi', womwe udachitika Lachisanu pa Ogasiti 16 ku Coed y Mwstwr Hotel ku Bridgend, wakweza ndalama zokwana £42,000 ku DEBRA.

Madzulo osaiŵalika amenewa anatheka chifukwa cha khama la Erin Ward, mayi kwa Albi, ndi banja lake. Albi anabadwa ndi recessive dystrophic epidermolysis bullosa (RDEB) ndipo adakondwerera chaka chake chobadwa cha 1 dzulo (19th August).

Pamene Albi adalowa m'dziko lino, ulendowu unali wovuta kwambiri. Miyendo yake yaying'ono, yofiira komanso yaiwisi idawonetsa kuti palibe cholakwika, koma mothandizidwa ndi akatswiri ndi DEBRA UK, tidapeza mpumulo ndi mayankho.

Dziwani zambiri za ulendo wa Albi

Alendo anasangalala ndi kulandilidwa kwa zakumwa zonyezimira m'bwalo la hotelo, chakudya chamadzulo atatu ndi vinyo, zosangalatsa zapamoyo kuchokera kwa Cor Meibion ​​Male Choir ndi The After Party Band, komanso mpikisano wobetchera ndi kugulitsirana ndi mphotho zoperekedwa moolowa manja.

Mpirawo udapezekanso ndi Purezidenti waku UK wa DEBRA a Simon Weston CBE ndi Janet Hanson, EB Clinical Namwino Katswiri pa Chipatala cha Great Ormond Street, omwe onse adalankhula usiku womwewo za momwe moyo ulili kwa mabanja omwe amakhala ndi EB ndi DEBRA UK masomphenya a a dziko limene palibe amene amavutika ndi ululu wa EB.

Choyamba, tikufuna kunena zikomo kwambiri kwa Erin ndi banja lake chifukwa chokonzekera mwambowu komanso kwa abwenzi ndi abale awo onse omwe akuchita kuti apeze ndalama za DEBRA; kuphatikizapo timu yomwe ikutenga nawo mbali Cardiff Half Marathon pa October 6 ndi Epic Challenge kukwera Great Rift Valley ku Kenya, kuyambira pa 26 October.

Tikufunanso kuthokoza omwe adathandizira mwambowu pothandizira usikuwo, gulu la Smart BodyShop Solutions, Mirror Image Accident Repair Center ndi MW Vehicle Services Ltd, ndi ena onse omwe adapezekapo ndikuthandiza kupeza ndalama zothandizira mabanja omwe amakhala ndi EB.