Nkhani ya Olivia

"Dzina langa ndine Olivia ndipo pa 23 Epulo 2023 ndikuyenera kuthamanga Marathon yanga yoyamba mumzinda wokongola wa London! Ndine wokondwa kwambiri kuthandizira DEBRA ndi awo 'Moyo Wopanda Zowawa', kupeza chithandizo ku #StopThePain kwa omwe akukhala nawo epidermolysis bullosa (EB).

Ndikuthamanga mpikisanowu ndi Abambo anga omwe adandidziwitsa za DEBRA, bungwe lachifundo lomwe limatanthawuza zambiri kwa iye ndipo zakhala zodabwitsa kuwerenga kuchuluka kwa DEBRA yachita mpaka pano, komanso kafukufuku yemwe akuchitika pakugwiritsa ntchito mankhwala osokoneza bongo komanso njira zina zochiritsira.

Pamwambo uliwonse wopeza ndalama, zikwangwani, zowulutsa ndi mabaluni zakhala zikuyang'ana pa DEBRA, mitu yabuluu komanso tebulo lagulugufe confetti! Zakhala zanzeru kubweretsa anthu pamodzi kuti tipeze tiyi masana, mafunso opezeka m'ma pub, zokambirana za Isitala, kapena filimu yamadzulo, ndipo zidatipatsa nthawi yoti tiyime ndikusinkhasinkha za ntchito yomwe DEBRA ikuchita komanso chiyembekezo chamtsogolo.

Ndili pa maphunziro anga amathamanga ndimamvetsera Podcasts, ndi 'Under My Skin' podcast ndi DEBRA zakhala zolimbikitsa kwambiri. Kumva dzanja loyamba kuchokera kwa Lizzie Mounter za kukhala ndi EB Simplex, zomwe zimayambitsa matuza opweteka pamapazi ake komanso momwe adathamangira London Marathon zinali zolimbikitsa. Lizzie analola kuzindikira dziko lake lomwe linali lopepuka, la maphunziro ndi chikumbutso cha nthawi yowonjezera, mphamvu, ndi zowawa zomwe munthu yemwe ali ndi EB angadutse musanayambe ntchito iliyonse. Nthawi iliyonse ndikavala nsapato zanga tsopano, ndimaganiza za Lizzie ndi kutsimikiza mtima kwake ndipo zimandilimbikitsa kuti ndituluke ndikusawombera alamu (yomwe imayesa nthawi zonse!).

Ndiye ife tiri pano, kwangotsala sabata imodzi kuchokera tsiku lalikulu, ndikuyembekeza kuti ndi tsiku loti tinyadire nalo, ndipo ndikuyembekezera mwachidwi kupita ku gulu lachisangalalo la DEBRA ndi abambo anga, ndikuwona anzanga ndi abale anga, ndi kukwaniritsa cholinga cha moyochi chomwe, kwa ife tonse, tidzamva kupindula kwakukulu.

Chilichonse chomwe mungapereke ku chithandizo chodabwitsachi chingakhale choyamikiridwa kwambiri! Zopereka zilizonse zimathandizira pakufufuza ndikuthandizira mabanja ndi anthu omwe ali ndi EB.

Malizitsani ndi Buckingham Palace ndi nkhomaliro yayikulu! "

Olivia adayankha funso zodabwitsa £2,219 mpaka pano. Ndife othokoza kwambiri chifukwa cha othamanga athu onse a #TeamDEBRA omwe atenga nawo gawo kuti apeze ndalama za DEBRA ndikuwafunira zabwino zonse Lamlungu pa 23 April!