Malipoti athu

Zosintha zaposachedwa za DEBRA

Kutsatira kusintha kwa umembala wa DEBRA mu 2022, Bungwe lakhala likuganizira njira zopititsira patsogolo momwe timasungirira umembala wathu, komanso omwe ali ndi chidwi ndi ntchito ya DEBRA, kuti adziwe zomwe tikuchita komanso kupita patsogolo komwe tikuchita polimbana ndi mliriwu. EB.

Chifukwa chake, kuwonjezera pa nsanja yathu yolumikizirana yomwe ilipo, tikhala tikupanga zosintha zazifupi ndi zina mwazabwino za kotala yapitayi.

Werengani DEBRA Quarterly Update 2023 Q1

Werengani DEBRA Quarterly Update 2023 Q2

Werengani DEBRA Quarterly Update 2023 Q3

Werengani DEBRA Quarterly Update 2023 Q4

Werengani DEBRA Quarterly Update 2024 Q1

Malipoti ndi maakaunti apachaka

Dziwani zomwe tapeza m'chaka chathachi komanso momwe tagwiritsira ntchito ndalama zanu pothandizira anthu omwe ali ndi EB.

Lipoti Lapachaka la 2023

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Lipoti Lapachaka la 2022

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Chivundikiro chakutsogolo cha lipoti lapachaka la trustee 2021

Lipoti Lapachaka la 2021

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Lipoti Lapachaka la 2020

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Lipoti Lapachaka la 2019

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Lipoti Lapachaka la 2018

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Lipoti Lapachaka la 2017

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Lipoti Lapachaka la 2016

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Lipoti Lapachaka la 2015

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Lipoti Lapachaka la 2014

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Lipoti Lapachaka la 2013

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Lipoti Lapachaka la 2012

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Lipoti Lapachaka la 2011

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Lipoti Lapachaka la 2010

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Malipiro & malipiro

Chonde pitani wathu Gender Pay Gap ndi Malipiro a Executive masamba kuti mudziwe zambiri.

Latest

Lembetsani ku maimelo a umembala wa DEBRA

Lowani kuti mulandire zosintha kuchokera ku DEBRA za umembala wanu.
Othandizira a DEBRA UK, Paul Glover ndi Martyn Rowley, akweza £ 115,000 kwa mabanja omwe akukhala ndi EB

Lachiwiri pa Seputembara 3, othandizira odzipereka a DEBRA UK Paul Glover ndi Martyn Rowley adalandiridwa ku ofesi yayikulu ya DEBRA UK kukondwerera kupambana kwawo kwakukulu kokweza £115,000 mu 2024 kuthandiza omwe akukhala ndi EB.
DEBRA UK Challenge 2024

Seputembala uno, chonde thandizirani Graeme Souness pazovuta zake za 'BE the difference for EB'.
Graeme Souness CBE ndi Isla Grist akumana ndi banja la Barnaby Webber pa BBC Breakfast

Pa 21 Ogasiti 2024, Wachiwiri kwa Purezidenti wa DEBRA Graeme Souness CBE ndi Isla Grist, omwe amakhala ndi recessive dystrophic EB (RDEB), adawonekeranso pa BBC Breakfast.

Othandizana nawo

Ku DEBRA timanyadira kugwira ntchito mogwirizana ndi zaumoyo, kafukufuku, ndi ogwira nawo ntchito ku UK komanso padziko lonse lapansi.
ESG - Zachilengedwe, Zachikhalidwe ndi Zaboma

Ku DEBRA, tikugwira ntchito molimbika kuti tikhale gulu lokhazikika komanso lokonda zachilengedwe muzonse zomwe timachita komanso aliyense amene timagwira naye ntchito.
Momwe timagwiritsira ntchito ndalama zathu

Dziwani momwe DEBRA imapezera ndalama komanso ntchito zomwe ndalama zake zimathandizira.
Kufanana, Kusiyanasiyana & Kuphatikizidwa

Kuti dera liziyenda bwino, membala aliyense amayenera kumva kuti ndi wofunika, kumvetsera, kulemekezedwa, kulandiridwa komanso kuimiridwa.
Gulu lathu la utsogoleri wamkulu

Gulu lathu la utsogoleri wamkulu likuyesetsa kukwaniritsa cholinga chathu chokweza moyo wa anthu omwe ali ndi EB komanso kufunafuna kwathu machiritso.
Bungwe lathu la trustee

Bungwe Lathu la Matrasti limapangidwa ndi anthu ambiri omwe amakumana ndi EB, omwe ali ndi EB eni kapena ali ndi achibale apamtima omwe ali ndi EB, komanso omwe ali ndi luso komanso chidziwitso chomwe chingawonjezere phindu ku utsogoleri ndi utsogoleri. pa DEBRA.
Ndondomeko zathu

Ndondomeko zathu zonse zitha kupezeka pano patsamba lathu, lomwe limakhudza magawo osiyanasiyana a ntchito yathu.
Makomiti athu

Bungwe Lathu la Matrasti limaphatikizapo anthu ochokera kosiyanasiyana komanso maluso osiyanasiyana. Kuti tiwonetsetse kuti bizinesi ikuyenda bwino, tili ndi makomiti anayi a board.
Njira yathu

Tonse pamodzi, pazaka 40 zapitazi, tapindula zambiri ndipo tili ndi mbiri yonyada. Tinali bungwe loyamba padziko lapansi lomwe linakhazikitsidwa kuti liyang'ane pa EB.
Zotsatira zathu

Mfundo zathu zimapereka zikhulupiriro zofanana, makhalidwe ndi kumvetsetsa kuti zithandizire ndi kutithandiza kugwirira ntchito limodzi kuti tikwaniritse cholinga chathu.

Ambiri amawerenga

Pezani malo ogulitsa

Pezani sitolo yanu yapafupi ya DEBRA ndikuthandizira kulimbana ndi EB. Masitolo athu amagulitsa zovala zotsika mtengo komanso zapamwamba zomwe timakonda kale, mipando, zinthu zamagetsi, mabuku, zida zakunyumba ndi zina zambiri.
Kusonkhanitsa mipando

Perekani mipando yanu yosafunikira, zinthu zapanyumba ndi zamagetsi pogwiritsa ntchito ntchito yathu yaulere yotolera mipando. Pokhala ndi njira zotetezera, kupereka zinthu zanu sikungakhale kosavuta.
Zinthu zomwe sitigulitsa

Dziwani kuti ndi miyezo yaumoyo ndi chitetezo ndi zilembo zomwe tikufuna komanso zomwe sitingathe kugulitsa.
EB ndi chiyani?

Epidermolysis bullosa (EB) ndi matenda opweteka omwe amatuluka pakhungu popanda mankhwala. Dziwani za mitundu yosiyanasiyana ya EB, zomwe zimayambitsa, zizindikiro ndi mankhwala.
Graeme Souness akusambira English Channel kuti akweze £1.1m kuti athetse ululu wa EB

Graeme Souness, wosewera mpira wakale wapadziko lonse lapansi, manejala, komanso pundit, akusambira English Channel mwezi uno kuti akweze ndalama zokwana £1.1m kuti aletse kuwawa kwa epidermolysis bullosa (EB).
Lumikizanani nafe
Perekani zinthu

Perekani zinthu zanu zomwe munazikonda kale, kuphatikiza zovala, mipando ndi zida zapanyumba kuti zisatayidwe komanso kutithandiza kupeza ndalama zofunika kudzera m'masitolo athu. Dziwani zambiri za momwe mungaperekere zinthu lero.
Tizigwira nafe

DEBRA ikhoza kupitiriza ntchito yake yofunika ndi chithandizo ndi chilimbikitso cha anthu ammudzi komanso ndi khama la antchito ake ndi odzipereka.
Khalani membala

Ngati inu kapena wachibale mukukhala ndi EB, ndinu wosamalira kapena wina amene amagwira ntchito ndi anthu omwe akhudzidwa ndi EB, ndiye kuti mutha kukhala membala wa DEBRA. Dziwani momwe mungachitire.
Nkhani ya Isla

Ndife banja labwinobwino. Ana athu, Isla ndi Emily, amapita kusukulu, amakhala ndi anzawo ndipo amakonda kusewera pa trampoline. Koma m'modzi mwa ana anu akakhala ndi EB, muyenera kutanthauziranso bwino.

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