Mamembala Pitstops

Mamembala athu a Pitstops (omwe kale ankatchedwa Parent Pitstops) tsopano ndi otseguka kwa onse! Zochitika zaulere zapaintaneti izi zimapereka mwayi kwa mamembala onse - makolo ndi osamalira komanso omwe akukhala ndi EB - kulumikizana kudzera pa Zoom ndikugawana zokumana nazo ndi malingaliro okhudza mitu yokhudzana ndi ana ndi akulu omwe amakhala ndi mitundu yonse ya epidermolysis bullosa (EB).

"Nyumba yabwino yosinthira zokumana nazo ndikukambirana zovuta zokhudzana ndi ana athu omwe ali ndi EB. Kukhala watsopano ku moyo watsopanowu ndi mwana yemwe ali ndi EB, zinali zabwino kudziwa kuti simuli nokha ndipo pali gulu lokuthandizani. Ndinapezanso mabwenzi apamtima, ndi anthu amene amamvetsa bwino zimene mukukumana nazo.”
- membala wa DEBRA UK.

Zochitika izi ndi mwayi wabwino wolumikizana ndi mamembala ena, kugawana maupangiri, ndikusinthana upangiri kwa ena okhala ndi EB. Nthawi zina tidzakhala ndi okamba alendo oti akambirane nkhani zomwe zimakondanso gulu la EB.

Gawo lililonse limakhala kuyambira 11am kwa ola limodzi. Tikuyembekezera kuti mudzakhale nafe.

Ngati muli ndi malingaliro pamitu yomwe mungafune kuti ikambidwe pazochitika zamtsogolo, chonde tumizani malingaliro anu kwa ife communitysupport@debra.org.uk.