DEBRA Swim Challenge 2025
Iwo anachita… kachiwiri! Dziwani zambiri zamasewera osambira a Team DEBRA. Nthawi idakalipo yowathandizira.
Mnzanga Isla ali ndi zaka 16. Ndiwowala, woseketsa, wodzaza ndi moyo - komabe amakhala mu zowawa mosalekeza.
Isla ali ndi khungu losowa kwambiri lotchedwa epidermolysis bullosa (EB). EB imadziwika kuti khungu la butterfly chifukwa khungu lake ndi losalimba ngati mapiko a gulugufe. Ngakhale kukhudza pang'ono kumatha kupangitsa kuti chithupsa ndi kung'ambika. Mlungu uliwonse, Isla amapirira maola ambiri akusintha mavalidwe. Amadalira mankhwala opha ululu kwambiri kuti angodutsa tsiku lonse.
Ndipo moyo, palibe mankhwala - panobe.
N’chifukwa chake ndakhala ndikulimbana ndi vutolo kwa moyo wanga wonse.
Pakati pa Lachitatu 30th April ndi Lachinayi 1st May, ndinasambira English Channel, kumeneko ndi kubwerera. Chifukwa Isla amafunikira zambiri kuposa chifundo chathu - akufunika yankho.
Pali chiyembekezo. Pali mankhwala odalirika omwe amatha kuchepetsa kapena kuletsa kufalikira kwa EB. Amatha kuchepetsa ululu, kuthandizira mabala kuchira msanga, ndikupatsa anthu ngati Isla moyo wosalamulidwa ndi ululu. Kuti mankhwalawa athe kufikira mabanja, amayenera kuyesedwa - ndipo izi zimawononga ndalama. Mpaka £500,000 pachiyeso chilichonse chamankhwala.
Ndiye ndikufunsani, kuchokera pansi pamtima wanga: mungandithandize?
Kupereka kulikonse kudzatibweretsa pafupi ndi chithandizo chenicheni. Kupumula kwenikweni. Kudziko lomwe ana ndi akulu omwe amakhala ndi EB ngati Isla sayenera kudzuka ndikuopa ululu.
Nthawi ikadalipo. Chonde thandizirani kusambira kwathu lero kapena pangani ndalama zanu. Nanga bwanji kusambira kothandizidwa, kuthamanga, chilichonse chomwe mungafune - ndikukweza ndalama zothandizira kafukufuku wa EB wosintha moyo.
Tiyeni tichite chinthu chachilendo kwa anthu amene ali ndi vuto limeneli.
Zikomo,
Graeme Souness CBE
Wachiwiri kwa Purezidenti, DEBRA UK