Thandizani kuthetsa ululu wa EB
Kwa Jasmine. Kwa mabanja ambirimbiri ngati iye.
Tsiku lililonse, ana ndi akuluakulu monga Jasmine wazaka 13 amakhala ndi ululu womwe ambiri a ife sitingathe kuuganizira.
Kodi mungathandize kupeza chithandizo chofunikira komanso kafukufuku wokhudza kupeza chithandizo mwa kupereka lero?
Jasmine ali ndi epidermolysis bullosa (EB), matenda opweteka kwambiri omwe amachititsa kuti khungu lake lizituluka matuza ndi kung'ambika akangokhudza pang'ono. Amadziwikanso kuti khungu la gulugufe.
Ngakhale kukhudza pang'ono kungayambitse mabala.
Matenda ndi mantha osatha.
Kusintha zovala kungatenge maola ambiri ndipo kumakhala kowawa.
Tangoganizani kuti simungathe kukumbatira mwana wanu pamene akulira ndi ululu poopa kumuvulaza kwambiri.
Izi ndi zoona za Jasmine. Ndipo ndi zoona za mabanja ambirimbiri ku UK konse.
Koma tsopano pali chiyembekezo chenicheni
Chifukwa cha othandizira ngati inu, mukupereka ndalama zothandizira zofunika kwambiri lero, komanso kuyambitsa kafukufuku wa mawa. Kafukufukuyu akuyang'ana kwambiri pakugwiritsa ntchito mankhwala omwe alipo kale pa matenda ena a pakhungu, kuti apeze chithandizo chomwe chingachepetse ululu ndikukweza moyo wa anthu omwe ali ndi mitundu yonse ya EB.
Njira iyi ndi:
- Mofulumira kuposa kupanga mankhwala atsopano kuyambira pachiyambi
- Yotsika mtengo kwambiri
- Akuwonetsa kale lonjezo lenileni
- Chomwe chimafunika ndi chithandizo chimodzi chokha kuti musinthe chilichonse
Momwe zopereka zanu zimathandizire
Pamodzi, titha kuyika ndalama zokwana £20 miliyoni kudzera mu pempho lathu lachangu la Stop the Pain kuti tithandize anthu omwe ali ndi EB kukhala ndi moyo osati nthawi yayitali yokha, komanso wabwino.
Mphatso yanu ithandiza kupeza ndalama zothandizira anthu a EB masiku ano, komanso kafukufuku amene amatibweretsa pafupi ndi chithandizo ndi machiritso a EB.
- £25 ingathandize kupeza ndalama zothandizira akatswiri omwe ali ndi EB kuti achepetse ululu wawo
- £50 ingathandize kusuntha mankhwala abwino kwambiri pafupi ndi mayeso azachipatala
- £100 ingathandize ntchito ya akatswiri yomwe ikufunika kuti ayesere chithandizo mwachangu komanso mosamala
Chonde perekani lero
Thandizani ana ngati Jasmine kuti apeze mpumulo ku ululu koyamba.
Chopereka chanu chingathandize kusintha chilichonse.