Pitani ku nkhani

Siyani mphatso mu Will yanu

Mzere wa munthu wamkulu ndi mwana akukumbatirana umapezeka pafupi ndi mawu akuti: "Siyani Cholowa ndi mphatso mu Chifuniro Chanu" chakumbuyo kwa buluu wakuda ndi agulugufe ang'onoang'ono.

 

Tikufuna dziko lopanda ululu wa EB. Mphatso mu Will yanu ingathe: 
  • Thandizani mayeso amtsogolo ogwiritsira ntchito mankhwala a EB kuti muchepetse ululu wa epidermolysis bullosa (EB).
  • Sungani nthawi yopuma komanso kukumbukira banja lanu Nyumba ya tchuthi ya DEBRA.
  • Kusintha moyo wa anthu okhala ndi EB.
  • Wonjezerani unamwino wa EB wapadera ndi chithandizo cha mabanja
Cholowa chanu chikhoza kutanthauza kuti kukumbatirana kumabweretsa chitonthozo, osati kupweteka.
Dziwani chifukwa chake kusiya cholowa kuli kofunika, ndi mphatso zamtundu wanji zomwe mungasiye, komanso momwe mungayambire - ndizosavuta kuposa momwe mukuganizira!
Mayi wina wovala chovala chamaluwa akukhala pa sofa ya wicker m'munda, akumwetulira ndikukumbatira galu wamkulu wa German Shepherd.

Momwe mungapangire Will

Ngati mukufuna kusiya mphatso mu Will yanu ku DEBRA, ndizosavuta kuchita, kaya mukulemba Will yatsopano, kapena kukonzanso Will yomwe ilipo.
Dziwani zambiri
Dzanja lokhala ndi cholembera cholembera limasaina chikalata chokhala ndi mawu osindikizidwa komanso siginecha.

Funsani mphatso zanu mu bukhu la Wills

Kupanga Wills kumakhala kovutirapo, ndichifukwa chake taphatikiza mphatso yathu mu kalozera wa Wills kuti ntchitoyi ikhale yowongoka momwe tingathere.
Pezani wotsogolera wanu tsopano
Membala wa DEBRA Scarlett ndi amayi ake akumwetulira ndikugwirana chanza.

Lembani chifuniro chanu kwaulere kwa inu

Tili ndi njira ziwiri zosavuta zolembera Will YAULERE: mutha kulemba Will yanu pa intaneti, pafoni kapena kupita kwa loya wakomweko.
Werengani zambiri
Mkazi wovala shati labuluu la "debra" wakhala patebulo, akumwetulira ndikumvetsera mtsikana wamng'ono yemwe ali pa njinga ya olumala atagwira chimbalangondo cha teddy—kusonyeza momwe cholowa chanu chingathandizire odwala a EB kupeza chitonthozo ndi chithandizo.

Momwe cholowa chanu chidzathandizira odwala EB

Mphatso mu Will yanu kwa DEBRA ingathandize kupeza ndalama zothandizira anthu ammudzi komanso kufufuza njira zochiritsira matenda osiyanasiyana a EB.
Dziwani zambiri
Munthu wovala malaya abuluu akulemba papepala ndi cholembera.

Mafunso Ofunsa Mafunso

Pezani mayankho kumafunso omwe amapezeka pafupipafupi okhudza kusiya mphatso mu Will yanu kupita ku DEBRA ndikuthandizira kusintha miyoyo ya anthu okhala ndi EB.
Werengani FAQs

"Payenera kukhala tsiku lomwe palibe amene akudziwa kuti EB ndi chiyani, osati chifukwa chakuti ndi yosowa, koma chifukwa chakuti palibenso"

Wendy Hilling, membala wa DEBRA komanso womuthandiza